UK Keratoconus Self-Help and Support Association

Would you like to talk to other people with keratoconus? People who actually know what you're talking about? Why not join us on Zoom next Saturday (21st)
https://www.keratoconus-group.org.uk/in ... g-on-zoom/

Hi Johnii, All the hospital information leaflets about CXL say it's OK to resume lens wear 2-6 weeks after the procedure. The Moorfields leaflet says this - "If you wear soft contact lenses, these should not be worn until you have finished the FML drops (i.e. after four weeks). If you wear hard...

Just to clarify. I've now checked with Sophie (apologies, should have done that before) and it's still only the Hove branch that specialises in fitting KC eyes with all types of lenses. Additional contact details are - Tel: 01273 567475 Email: info@sclerallenscentre.co.uk Website http://www.sclerall...

Many thanks, Green. I knew Sophie had moved to Hove (she used to be part of a Harley St practice) but had no idea she now had all these branches. Many years ago I acted as a guinea pig when she was demonstrating fitting mini scleral lenses at a workshop so her interest and dedication to KC goes back...

So pleased for you! I hope it's progress all the way now.

Hi Woildeye and welcome, I think the main reason you haven't had a reply is because most of us get our contact lenses through a hospital eye clinic where the optometrists with an interest in fitting KC and other interesting eyes are concentrated. That also has the advantage of lenses at the NHS rate...

Research into the genetics of KC is continuing. The genetic study which was the subject of Stephen Tuft's talk at our conference is looking for families with several members all diagnosed with KC. You'll find more details here https://www.keratoconus-group.org.uk/index.php/2022/10/26/do-you-have-fam...

This was the title of the talk given by Professor Stephen Tuft at our conference last month and you can find the video here https://www.youtube.com/watch?v=4AAdy3Y9jZs We were delighted to welcome a face to face audience plus a live stream audience for our first conference since the pandemic. But fo...

Driving at night was the first thing that went for me. Being able to read a number plate in daylight is no indication of how safe we are. So whether you're 'legal' or not, if you don't feel safe with the halos and glare and the reduced vision at twilight (all of which applied to me) then you're righ...

Thanks, Taylan, you beat me to it! Remarkably, the original changes were made seemingly without any consultation with optometrist or ophthalmologist professional bodies. So it looks as though questions from organisations like ours triggered AOP (the optometrists' professional body) to get involved. ...