UK Keratoconus Self-Help and Support Association

Hi all, thank you so much for your replies and kind words of encouragement and advice! Manby67 , it is nice to know that it's not only me who has to deal with dry eyes and uncomfortable lenses, as most people with RGPs I've spoken to are perfectly happy with theirs! I have now gotten a different set...

Hi All, thank you all for you advice and encouragement! I am exploring all the different avenues now, including speaking to the hospital's patient liaison team and talking to my GP to possibly get referred to a different hospital that may have more experience. I have also managed to get my private i...

Hi All, I was wondering if anyone had a similar experience with an NHS Hospital in regards to Keratoconus? I am really disappointed. Apart from their booking system which screwed up my first appointment (it kept sending me letters moving my appointment but the department had me down as 'did not atte...

Hi All, I was told last year that I had bilateral Keratoconus and have been referred to get RGP lenses fitted. I have been having issues with the lenses, my vision is just not how it should be. Apart from blurring, I have problems with strong ghosting (sometimes on the point of double vision) for th...