UK Keratoconus Self-Help and Support Association

I went for my first check-up at Eastbourne DGH since being referred to East Grinstead for Intacs (Left-Eye) and Cross-Linking on both eyes, so far I've had the Intac and Cross linking in my left eye and will be in East Grinstead on Saturday for the final Cross-Linking procedure (Which im not looking...

Sorry to scare you Matt, My vision to date has been up and down but most of the time it is as good as it was before the procedure it's still a little tingly occasionally and I find I get days when I'm quite light sensitive, no date for my other eye as yet but my follow up for this eye is on the 15th...

I'm glad it went well for you man, I had mine done at the Queen Vic the week before on the 14th and have to say it was an unpleasant experience,It was perfomed on my left eye which is my worst and already has an intac fitted. They administed anesthetic drops and proceeded with the eye scraping, I ha...

I'm yet to have Cross-linking myself, I'm due to get it done at the Queen Victoria on the 14th of March so I can't really advise on how it goes, however my understanding is that it will halt the progression of Keratoconus, if your eyes are actively getting worse I would consider it sooner rather tha...

Well after a waiting the Center for Sight called me to say they'd had a cancellation and had a space on Tuesday for my intacs to be put in.

Much sooner than expected hopefully it wont be long until they can do the CXL

Will do, I havent posted much but I often browse the forums on my nightshifts when it's slow at work.

Thanks for your replies guys, I went for my consultation at East Grinstead they we're busy and took about 3 hours before I was done with, they have decided to go ahead with CXL in both eyes as well as a precorneal ring in the left eye to hopefully help. I have to say I'm pretty pleased with this so ...

Hey All, i'm new to the forum and thought I'd say Hey.... I recently got diagnosed with Keratoconus in both eyes and am currently in the throws of dealing with that (I've explained this in another post so wont bore you guys with the details). Just would like to say this is a great site and that I wo...

Thank's for the replies guys! I work on computer's but am not "working" on them all day/night I work in police custody which results in quite a bit of time which is often spent reading books or using the internet I will most definitely discuss this with my boss though as yet with my glasse...

Greeting's Guy's what a find this is.....I recently got diagnosed a few months back with Keratoconus in both eyes and have been pretty unsure as to what I could expect, finding this forum is great and I've been lurking a bit to fish out as much info as I can. If it's OK with you guy's I'd like to ex...