UK Keratoconus Self-Help and Support Association

Thanks Adam, very interesting comments and sorry to hear about the torn cornea which must have been an horrific experience. Can you clarify if you are using sclerals on both eyes or just on the one without intacs and is your right eye vision needing any correction at all? Good luck, John

This is a request for anyone with recent experience of intacs to comment on a question I have been asked about their use. Most of the FAQ section is fairly old on this topic so any recent input will be appreciated. Someone who is struggling with wearing time of RGPs is desperate to find a way forwar...

Congratulations to all celebrating anniversaries! Here's to many more and if you need a bit of optimism, my graft is now in its 36th year.
John

Do hope you are now out of pain Sheila and that the inflammation hasn't returned, wishing you all the best and every encouragement in getting through this and hope you feel able to post an update sometime, good luck! John

venting helps though, so don't worry about it! KC itself is not painful, as Anne said, (though the impacts on life are at least a pain in the backside) but I guess a lot of us have had eyelid issues at some time. I still bathe my eyelids most mornings just with a flannel and hot water as it seems to...

hi jonny, I've been wearing lenses over 45 years but never worn full sclerals though I know those who do seem very happy with them. I have a 'mini-scleral' RGP lens on one eye which is about 18mm in diameter and vaults the cornea; it rests on the white of the eye just outside the main bulge of the c...

That's really good to hear, Kamran, so pleased the forum helped you and now you can help others. Very best wishes to you for speedy progress, John

To follow up Clarissa, I've got a 35 year old graft that's survived a great deal of travelling, jiving, jogging, places with temperatures from -40C to +55C and also a one minute free-fall parachute drop from 15,000 feet, so you do not need to feel that you will be inhibited - you will need to wait t...

Advance notice of next meeting and the first one in 2016 - it will be on Saturday 16th April at 11:00 in the outpatients department of the Birmingham & Midland Eye Centre (behind the City Hospital off Dudley Road). This will be an open session for sharing information and experiences, meeting oth...

Advance notice of next meeting and the first one in 2016 - it will be on Saturday 16th April at 11:00 in the outpatients department of the Birmingham & Midland Eye Centre (behind the City Hospital off Dudley Road). This will be an open session for sharing information and experiences, meeting oth...