UK Keratoconus Self-Help and Support Association

Hi Lizzy - welcome to KC World! Lifetime Membership is free!

Hi Zoe - sound interesting - count me in! FYI I am post graft in one eye & going for graft in the other.
Jez

I know what you mean but... I do find it off putting when he pins me against the ropes & the Nurse starts hitting the floor shouting "one ah, two ah" - never quite made it to "three ah" with me so I retain the belt to return again lol!!!

Good luck Louise - it's not an easy route whichever way us KC people go. I know exactly what you mean about the worries when you are "one eye dependent" and that is the one you are having difficulties with.I also really get what you mean re. Scleral lenses & Ken. Ken and his lenses are...

Hope it goes well Jonny with the lenses... I am assuming you have spoken to your consultant and agreed this is the way forward? I really struggled with my sclerals but then that was approx 20 years ago and my KC was already well advanced & treatments/lens options were much more limited.. I reall...

Ooooops -- I have no idea whet "user ions" came from... Should be "questions" lol

Hi Liam - Chris speaks many a wise word in response to your post. It is a battle when you have KC & that's the top and bottom of it. I suspect (& now I am feeling really old!!!) that I am approaching being 20 years older than you. Whilst everyone is different my KC is pretty severe. I have d...

Blimey - way to go Loz! What are you going to post on here next? Persuing career in Astronomy? Training to be a fighter jet pilot? Becoming a microbiologist without the need for a microscope?!!!! I am really pleased for you - it is really great news. It also helps misery guts like me to hear how wel...

Many thanks for the update Anne. I look forward to the Newsletter too... I would really hope to make to the next meeting - can you confirm the date and venue please? A complete longshot...but do people who have KC ever try and link up when they have a Hospital/Clinic appointment? Just a complete lon...

Really sorry that I couldn't come to the meeting on 17/3 - how did it go? Will the next newsletter cover the highlights? Hope those who made it had a good time!
Jez