UK Keratoconus Self-Help and Support Association

Melissa, Thank you for your reply. That's really helpful. The problem that the optometrist is trying to solve is the amount of protein deposits on the lenses. I currently get 15 -16 hours from my lenses but by the evening they need a clean. I work in an air-conditioned office and sometimes I need to...

I've not noticed stress affecting my eyes. But I do find the whole process of getting new lenses or having an eye test stressful. There's the long wait between contact lens appointments; the two hour journey and three changes of trains to get to the hospital; then the lenses not necessarily performi...

I'm hopefully going to collect a pair of corneo-scelral lenses from the hospital in a couple of weeks time. However I have been warned that they may not work for me and the next option would be to try piggy backing. Does anyone have any advice about piggy backing? I have the following questions that...

Fitting patients with keratoconus can take time Lynn, If only you could do something to shorten the time taken! It’s not only the chair time, but the time between appointments that makes the whole process of getting new lenses so trying. I started a refit for a new pair of lenses April 2009 and I’m...

Hi Wolves, I tried a pair back in February and the test set looked so promising; although I was warned that they don't work for everyone. I was so exited to be getting state of art lenses! I watched all the videos on-line to learn how to put them in and take them out. I was really looking forward to...

Lynn, I agree it is an important issue. For me the important issue is that glasses do not work as well as the prescription would imply. I’ve just collected my two new pairs of glasses and I am disappointed. The varifocal glasses were set up for distance/computer and reading, and no matter where I lo...

However, if you are passionate about the way KC is dealt with in the UK right now and truly want to make a difference, now is the time to act. I seriously believe we now have an opportunity to make change happen. Yes I‘m passionate about the way KC is dealt with – For me – of the items listed I wan...

I went to collect my new lenses last month but unfortunately they were not a good fit so I came away without them. I'm not too sure what the problem was but several photographs were taken of my eyes wearing the lenses so that the fit can be tweaked. I go back in August ( a TEN week wait for the next...

Just thought I'd add an example of how my glasses prescription of 6/9+ vision on the Snellen chart is misleading. The Saturday before last I was wearing my glasses to watch the Eurovision Song Contest results and I could easily read the name of the country giving their votes on the right hand side o...

Lynn,

You have my permission to print out my contribution on this thread and your previous thread tiltled 'New Sight Registration possibility for KC: Input needed'.

Lia