UK Keratoconus Self-Help and Support Association

Hi I had crosslinking in my right eye a few weeks ago. In a couple of weeks I'm due to have the same in my left eye. I was swayed to go for it because the aim of the procedure is to half progression of the condition in eyes that are progressing as opposed to stable. It's a procedure that's been carr...

Hi I've just had crosslinking in one eye (having the other one done next month) at the Centre for Sight in East Grinstead. They also have a clinic at Queen Anne Street, London. Can't remember how much the consultation was, but crosslinking is £1100 per eye. So far, I'm pleased with the advice, treat...

Hi Yup, I've got PMD. My understanding is that PMD is a rare type of KC and that characteristically it can affect up to 50% of the cornea, generally the bottom areas. In something around 15-18% of PMD sufferers end up having grafts. However, I've been advised that there are options (different in eac...

Hi My understanding is that if the cornea is found to be thinner than 400 microns then as standard a hypotonic riboflavin solution is used (there are 2 types) which has the effect of thickening the cornea. That seems a bit strange checking the thickness of cornea after removing the epithelium, given...

Hi I'm afraid I know nothing about T-CAT, but a little about C3-R. I guess I'm in a similar boat to you ... I felt I had no choice but to go down the private route for various reasons. I've had KC for just over 10 years. I was led to believe by my optician that it had stopped two years ago, but beca...

Hi Thanks both for your replies. I've emailed the Centre for Sight and told them that I may be on my own and asked for advice regarding whether I should have both eyes done on the day. My guess is that the only reason I was advised to have both done was for financial reasons – I'm from Edinburgh and...

Hi

Just received a copy of a letter which has been sent to my GP. Says vision in my right eye is 6/24 and left is 6/12. Can anyone make sense of this for me please?

Thanks.

Caroline.

Hi I'm having both eyes crosslinked on the 21st of this month at the Centre for Sight. Although I've asked what to expect, there's nothing like hearing it 'like it is' from people who've actually had it done. Added complication is that I'll likely now be travelling alone and am worrying about all so...

Hi I was diagnosed with KC over 10 years ago. Thought things have stopped until recently. Alarm bells started ringing when local optician sold me a £325 pair of glasses that made absolutely no difference. After I made a bit of a noise, it became clear something wasn't right. I then went to see Shera...

Hi Sorry can't offer any advice other than I was diagnosed with KC over 10 years ago. Thought things had stopped until fairly recently. I went private and was told that I have advanced Pellucid Marginal Degeneration in both eyes (advanced in right eye, not so bad in other). I'm booked to have both e...