UK Keratoconus Self-Help and Support Association

Hi Wanted to post about my surgical success after having crosslinking and a wedge resection with auto lamellar keratoplasty (don't ask what that means!). In April last year I visited the Centre for Sight and saw Mr Daya who advised why my vision was deteriorating (my optician advsed that my vision h...

Hi I must admit to being really worries about that too now that I've had half of my stitches removed (prematurely, be out of necessity). Balaclava? Handcuffs? DIY Goggles? Eye mask? Marigolds? I've still got my plastic eye shield and bought surgical tape out of a well known chemist (not easy getting...

Hi James There's been quite a few members that have had crosslinking - some report no pain at all, and others aren't so lucky. Just wanted to add that the pain or discomfort wasn't unbearable (stung a little bit and watered a lot). I've been through worse! I suspect in my case it was down to the fac...

Hi I had crosslinking in my right eye in June last year, and my left eye in July at the Centre for Sight in East Grinstead. Cost was about £1100 per eye if memory serves me correctly. Have to say that I was neither up nor down after having had crosslinking in my right eye, but my left eye was a diff...

So.. to get to the point!! Yes you guys are being harsh on Katie as she has no editorial control over the programme. Direct your ire at the programme makers... The decision to make her travel all over the place was nothing to do with her...it was to do with editing and production in order to make a...

Hi dalbeath I don't think anyone disputes that Katie's a very brave lady. Totally get what you're saying about it being aimed at jo public, but in my view the advert or the title or the programme didn't proportionally match the actual programme content. The title infers it's scientific, but when one...

Hi Firstly, I think Katie is one very brave lady - she's clearly been through such a lot. However, I had great hopes for the programme. I expected it to be informative and really delve into the depths, ethics, and possibilities of the use of donor tissue and stem cells, etc. Lots of things seemed to...

Hi I'm afraid I can't comment on whether a general is available, but can offer some reassurance... I had crosslinking in both eyes and have had a graft. I must admit to feeling very apprehensive, but after being given a local, it most definitely took the edge off things. I most definitely didn't fee...

Hi I was watching something on channel 4 last night and saw an advert for a programme next Tuesday at 9pm. Programme is about Katie Piper undergoing surgery (looks very much like it's based at Centre for Sight, if I'm not mistaken). Programme is called The Science of Seeing. I believe it covers Stem...

Hi I've had crosslinking in both eyes (right eye back in June 2011/left in July 2011) and had a wedge resection with auto lamellar keratoplasty in my right eye back in August 2011. I've found that it's taken around 4/5 months for my vision to feel back to normal after the crosslinking, however, my r...