UK Keratoconus Self-Help and Support Association

Michelle

Yes someone here posted it for me!

http://systane.co.uk/index.html

There is a link to stockists hope that helps

Claire

I don't really know. Maybe why i can't wear glasses and how sometimes i am in too much pain to wear lenses and can't see without them would be a start. Since being in pain i have told my boss and she is very understanding though i don't think she really knows about it, but as you said i guess that i...

Lynn thanks for explaining i don't think i came across that well! I have pain whether i wear my lens or not, but it gets worse when i wear it and then i have to take it out and have a break. I think without the pain lenses are not so bad, though i would rather have 20 20 vision and not wear them!!!!...

I habe never mentioned it in an interview or on a medical form except to occupational health when i was in pain with my lenses and needed time off work. I dont mention it as i don't see it as a disability as such, just as i guess others wear glasses and lenses for different reasons! Maybe this is be...

Hehe i think someone might have said that along the way! Thanks for your well wishes! I don't really know all the reasons and i am sure that someone qualified can tell you better than me, but i know that i lose sight because i take my lens out! As simple as that really!! Apart from that, without the...

Glad to know that it isn't just me who puts in my lenses when i shouldn't!!! Thanks for your reply, it made me smile :) My lens isn't doing too badly though i take it out as soon as i can. The systane is better though and i find my eye doesn't dry out as much so thanks for that. Just hoping to have ...

Kerry Hehe see playing a bass has it's uses but is way too big for me!!! Playing cornet is somewhat different because as you know we all share music for a start and it is a long way away! Though i did have to memorise loads of music though as well. The bands i have been in have never made championsh...

Lynn - It is ok i was only joking with you as everyone was so busy and it was nice to see that it could all be put together!! I know what you mean about having to do everything at once, i stay up really late to get things done, could even go to the point of being obsessive but i would hate to label ...

I need to second that as i am only just trying Systne out again after years of pain, and while it is not perfect it is getting better! It lasts a LOT longer than normal eye drops and my lens isn't as painful when i put it in.

Hope this helps you too! Take care

Claire X

Kerry Sweet hello there! Nice to 'meet' you here. Im 28 and waiting for scleral lenses myself, so while i have a basic idea of what they are i havent really tried them yet but am sure that someone here will fill you in!! Im really sorry about your vision, it just took me back a bit, as i had to give...