UK Keratoconus Self-Help and Support Association

Can anyone tell me how long my son will be off work when he has his graft done? We have been told nothing about this. We don't really know what to expect. I have read somewhere that he will have to keep his head still for a couple of weeks, but that is all we know. He has received his letter from th...

Thanks Andrew for your reply. You have given me more confidence now. My son's scarring is very bad. I saw it myself on the monitor. Both the surgeon and opthamologist said his scarring is really bad and that he couldn't see even with a lens. The opthamologist did say it would take at least a year fo...

My son and I traveled to East Grinstead yesterday to see the consultant about having the cornea graft. His own consultant at our local hospital doesn't do them and decided Simon needed to be seen by the one at East Grinstead. We had a 4 hour drive to get there but got there in plenty of time for his...

Hi all Not been on the computer for a while because I have been so busy at work. I work for a large store and as you can guess this is the busiest time of year. Anyway back to topic! My son now has his appointment to see the consultant at the East Grinstead hospital. (I think that is where he said) ...

Hi Rosemary. Simon has been wearing contacts for about 4 years now and at first they were ok, but recently they have been a problem for Simon. The optmetrist (sp) has been having problems getting Simon a fit. Anyway, yesterday I had a talk with him about the problems and he said one eye is being rub...

Today, my son went to the hospital to see the optometrist ( i think that is what he is called) to have his contacts sorted out. As you know from my last post, that Simon has been having problems with contacts and their fit. Well, he was told today that the contacts are no longer doing him any good a...

Hi Rosemary, best of luck to you too. I will be thinking about you when Simon and I are sat waiting. Hi Andrew, I think Simon is seeing the ophthalmologist. I know the person he is seeing is the top man under the consultant. Our optician said you can get no higher than this man at our hospital, what...

My son and I watched the DVD about the last conference and we learnt such a lot. We also went to see the optician that diagnosed him in the first place and she gave us some more information. She didn't know about this support group, so I told her about it and no doubt she will join. My son is to see...

Will there be any support group meetings in the Manchester area soon? I think my son and I would be interested in going to one.

Annie

Thank you for for the information that my son received yesterday. He said he was going to watch the DVD last night. I have not hear from him today yet, but he is coming round this afternoon. We think we might have found an optictian that deals with KC. She was the very first optician that found his ...