UK Keratoconus Self-Help and Support Association

Hi everyone I'm hoping someone can give me some advice. I've had KC since I was 14, now 21, with rapid progression. I had scans in November and they said I needed cxl within the next 6 months to still be eligible (verging on 400 mark in one eye). I was also told I need both corneas graphed. I return...

Hi I was diagnosed with KC at 14 in my right eye and a year later in my left. It has rapidly progressed for the past 7 years and i have tried hard and soft contact lenses which correct my vision. My problem is that without contact lenses, my left eye is very dominant as my right eye vision is very p...

Hi Thanks so much for all the replies, i didn't even know i was entitled to extra time and a private room! I have finished my exams now and fingers crossed they went well! Because i hadn't applied for extra time/enlarged papers early enough they couldn't provide these but they did show me how to mak...

Hi i am in the process of applying for student finance for my second year of university and i know that you can receive extra funding for disabilities. Does anyone know whether or not it is worth pointing out i have KC which refuses to stop getting worse!? I have trouble reading lecture white boards...

Hi i have KC worse in one eye than the other. When i was diagnosed i was told i had probably had it for quite a while but as the vision in my left eye was close to perfect i didnt notice. Hope everything goes well xx

After having a chat to a few people, think the reason i reacted badly to the contact lenses was because everything looked so different and magnified and i had never seen the world like that before also the fact i couldn't get away from that feeling. Hopefully having them fitted around June time so f...

Thanks for this advice and yes it was the RGP lenses i tried last time. I have heard about the soft lenses but didn't know if you could get them on the NHS? I have asked for a referral now so hopefully something should get down in the near future.
xx

Hi, I've just come back from my latest opticians appointment and have been told that i may not be able to drive for much longer. I am devastated at this news and are wondering what my options are. I have been told glasses have little to no effect so this is not a great option. Contacts would make se...

i like the word muppet!

This is soo random but what are peoples favourite word?? lol!!

stacexxx