UK Keratoconus Self-Help and Support Association

Thanx for that Gareth, some useful info there re: access to work. Yes public transport I've tried it, the train. It was so unreliable that my on line manager told me use your car like everyone else or else your sacked! Unless you work in the public sector I would never recommend that you disclose yo...

Thanx for that clarification Lynn of a keractometer. Dont know if it has been brought up on another thread Vic, but some interesting info on the keractometer on this link:- http://www.keratoconus-group.org.uk/forum/viewtopic.php?t=1984&postdays=0&postorder=asc&start=0 John Smith states:-...

This is a really serious issue and really does deserve serious debate and clarification. Based on my experience and present situation and the fact I have to financially provide for my family if I was involved in an accident and it was proven that it was caused by inadequate vision when wearing cont...

Moorfields is a centre of excellence for eyecare and the best the UK has. Its also likely to have the best and most experienced eye care consultants in the world.....presumably thats why an Arab Shiek is "buying them". Even the top consultant optom, Dr Troumans at MREH advised me last Fri...

I just thought I would add my two pence' worth re. satisfactory care - I have to disagree with you Steven that it is unsatisfactory to have to wait more than 15 minutes beyond 'appointment time'. Yes waiting for 2 hours can be frustrating, but I think that we DO have an excellent health service in ...

Vic states:- I just thought I would add my two pence' worth re. satisfactory care - I have to disagree with you Steven that it is unsatisfactory to have to wait more than 15 minutes beyond 'appointment time'. Yes waiting for 2 hours can be frustrating, but I think that we DO have an excellent health...

Michael Parnes states:- If the KC'er could not see, he should have sought help. So could you inform us Michael what should a person who has KC reasonably do to achieve a successful solution and comply with the law? The health care system based on my 23 years experience with KC does not offer a quic...

Hiya Donna, Pity theres no KC self help group formed in Cumbria/Lancashire! Most of the private sector would not touch KC treatment due to the high risk and it not being economically viable. The amount of consultation time needed in some cases to get a successful fit! Paying for it privately would ...

KC creates problems requiring management and solutions which can categorised into:- 1. the physiological 2. the psychological IMO a top quality advanced twenty first century health care system would deal with both, and there would be no need for self help websites like this. I agree with you Pat an...

Thanx for that Pat.....its spot on imo. Based on my experience the system is not fit for purpose because of inadequate competent management and being under human resourced in terms of trained experienced staff. Andrew delighted to know there is top quality treatment available in the UK. Rather than...