UK Keratoconus Self-Help and Support Association

John Smith states:- I agree with Gareth that the comment your employer made was indeed discriminatory, Steven. I disagree with you both John. It would have been discriminatory if I had explained I use the train rather than the car because the medical experts have informed I must not drive as my corr...

This situation of the interests of KC patients not being adequately represented in the NHS system by the patient/customer reminds me of the challenging experience I faced when I was elected as a Parent School governor at my kids local County Council run Primary school. Maybe these NHS centres of cus...

Again this lack of consideration mirrors the situation at MREH. At an appointment last year after almost two hours of waiting, with no magazines/anything to read in sight, I got out my mobile and started to play the games on it. It did no appear to bother any patients waiting. After a few minutes I ...

Pat, I made a comment earlier in this thread about the size of the print on posters at Moorfields generally. Not only that, every time I go I am never sure of my bearings and usually find the contact lens clinic, pharmacy etc more by luck than judgement. Am I the only one or are these senior moment...

One thing that I do appreciate here is the humour, the irony and the hope offered for effective KC patient representation to make improvements for all parties involved. This thread when reading through it reminded me of the TV comedy series "Allo, Allo" and the "elusive picture of the...

Sweet, A hot air balloon ride.......you dont need to become invisible to do that! My wife treated me to that as a surprise 40th birthday present, always been an ambition of mine. Did it over the Lake Districk on a calm blue sky day...........wow........what a wonderful and amazing sight the natural ...

If its the same people at the CL clinic as when I was there...I wouldnt hold your breath!....Jeeez the two women there moan and groan at everything! and god forbid you have to go up and ask how much longer...then its like youve just commited the biggest sin! I do hope they have changed the Clinic A...

Invisible for the day.........remember the TV series with Randall & Hopkirk? I think that I would follow the Queen of England, or Toblerone Tony for a day or failing that attend a Bilderberg group meeting. Yes I know what you gonna say "thats even sadder!" Jayuk states - Id prefer &quo...

Hi Donna, I agree its a shame there is no support group up here........maybe we should start one? I would support, help out and attend meetings for a Lancashire/Cumbria group if you or someone else in the area is interested in organising/arranging monthly/quarterly group meetings. Your welcome to co...

I'm currently trying a "mini" scleral only for one eye so far as apparently they are hand made and cost alot more than RGPs. Its easier to put them in once you've mastered the technique (have to keep eye surface horizontal to avoid the fluid escaping) although a bit messy and dead easy to ...