UK Keratoconus Self-Help and Support Association

Thank you. This is worth sharing so I have put a post on our website. May I add your name?

https://www.keratoconus-group.org.uk/in ... n-corneas/

Before having grafts, I struggled with the low sun around March time and put it down to tree pollen. I survived commuting by using extra strong ski sunglasses with closed sides. Good luck.

Thank you. I shall put a link to this on our new website which we hope to launch soon.

Eight of us formed the KC team among the 500 walkers. We gathered in front of the piano in Moorfields reception for a photo. After two of the coldest days in decades, the sun came out to send us on our way. It was a bright crisp morning with plenty of ice still floating on the canal. The route was p...

Recently I have become more aware of the importance of sharing our experiences. I realised that until I telephoned Anne Klepacz in 2014, apart from hospital clinics, I had not spoken to a single person who had the condition or knew anything about it. All the time I was under the NHS I felt that it w...

Without lenses I’m sure I too would have been classified as legally blind. It was a long time ago but I remember that without lenses I could not cross the road or even butter my toast easily. I had to stand about 5 foot away from the top letter on the eye chart before I could read it. That said, wit...

To add to what Anne has said, many of us have managed full careers with the aid of specialist contact lenses and, where necessary transplants. I had my second transplant in 1995 and, at the time had a 30 mile drive to work. From memory, I only had a few weeks off work, so all is not lost. Finding so...

I have just watched the DVD of the 2013 Confrence. It is worth watching the first speaker on the treatment of Keratoconus, I found it interesting. I'm sure Anne will send you a copy if you haven't got one already?

Just listened to the testimonial on the Boxer Wachler Web Site. Sounds very good. I just wonder if any one from the UK has been to see him and how did they get on?

I haven't any advice but I can say that I have had grafts in both eyes, one in 1986 and a second in 1995. I need to ware glasses to correct an astigmatism but apart from that I have gone on to have a full career and now my biggest problem is not seeing my golf ball if I hit a good shot. The surgical...