UK Keratoconus Self-Help and Support Association

Survey monkey is used by many charities to gather evidence on any range of topics, there's a cost but its very fundable.
Not RCT level of evidence but can be very useful in campaigning

Anyone interested in these issues; 1. The limitations of visual registration ie no provision for variable SVI before/after grafting, with lens difficulties where it's at opposite ends of the chart. Maybe a route around this would be a simple letter on headed paper stating sighted with/SVI without/in...

I wear a lens and glasses on top for 1 eye. I have 2 sets of glasses for computer and reading

Thanks Philip. I hope treatment of patients as people can improve too

An RGP refit for the health of the graft but I struggled with lens handling severely to the degree that it was seriously affecting me. Eventually I sought private help, I didn't have to worry about taking up time, interruptions, she listened and I knew she would cope if I panicked. She took the time...

My understanding is over 800 is desirable

Well I can update you - it doesn't exist. I found out by accident that I had an appt for this clinic whilst speaking to bookings about another appt. I'd received no letter or text 2 days before due appt. So I turn up and are told it was cancelled, not that I received notification. That these appts a...

Anyone ever heard of or attended the 'corneal outcomes clinic' at Moorfields?

I got a ligher tint from Boots for indoor use

Thank you Grant the ebay one is exactly what I was looking for, cheers!