UK Keratoconus Self-Help and Support Association

Hi Graham You're quite right in saying that manufacturers are constantly striving to develop new innovative products for patients with irregular corneas including KC. As a result, there's a vast range of lenses on the market from rigid, soft, hybrid, semi-scleral, etc. The biggest problem currently ...

Hi Dalbeith It sounds like your fab optometrist is seeing you (and possibly other KC patients) as a hobby to make his daily routine more interesting rather than earning a living. Otherwise, I fail to see how he could afford to provide his chair time free and supply you with lenses at virtually cost ...

In case anyone is wondering, AK stands for Astigmatic Keratectomy which basically means partial thickness incisions are made along the steepest meridian of the cornea which results in flattening of corneal curvature in that meridian, and hence reduction in astigmatism. In my experience success rate ...

Hi Libby We had an interesting and amusing discussion on this on the forum 2-3 years ago. There used to be talk about different traits of keratoconics, and even "KC personality type" was mentioned in the 70s and 80s! A typical keratoconic was described as highly intelligent, articulate, so...

Hi Sarkac The problem is there are numerous causes of ghosting with keratoconus, some will be less troublesome with rigid lenses, others with soft, so there's no easy answer! However, on the whole, ghosting should be less troublesome with rigid lenses, at least in a consulting room situation where y...

Hi Sarkac I am sorry but there must be a misunderstanding somewhere. I've been fitting Kerasoft lenses in its various versions (Kerasoft, Kerasoft2, Kerasoft3, KIC) for many years and have never come across carrying out an RGP fitting first and using the fitting characteristics of that to order a Ke...

NHS statutory charge is £52.90 for all lens types Anne and normally entitles the patient to a single lens. However, if patients need lenses replaced at frequent intervals eg. daily disposable lenses, monthlies or lenses replaced quarterly, most Hospitals would supply 6 months supply of lenses for ea...

Hi Kerri You were asking, if you had kerasoft lenses, and, if they needed changing every few months, how often you'd need to pay for replacements. There are a few different versions of kerasoft, some need replacing every 3 months, others can last "upto a year". If you had the quarterly one...

I was under the impression that the waiting list for grafts was 3-6 months, but I guess it all depends on local demand and resources.

Hi Libby Although its generally worth exhausting all avenues before considering a graft, there may be good clinical reasons why your daughter's consultant is recommending a graft and perhaps you could discuss these at your next visit. For example, he might think further thinning would increase risk ...