UK Keratoconus Self-Help and Support Association

so why isn't our national charity making a public statement about this? and direct action against it?

yup ample experience sadly, which is not what you want to hear x

oh no not good have been there, sending love x inbox if you need x

glad tohear it has subsided x

I just had to vent ....

you will not be "screwed" I am legally blind due to KC n have very little sight and been a solo parent for over 6 years now, it is not easy being a disabled parent but their are far worse things I can think to expose my small to than disability and difference with diversity. x

your body, your family, your fertility, should not be for a medic to dictate to you when n how you reproduce. I have a 6 yr old but whilst would love a 2nd know my physical health would be comprimised big time by doing so so it is complex for me wtihout factoring in my KC.

if your happy with your vision level, dont let it control your fertility. i is your body n your right to choose not a doctors

I love yet hate disability. Bit of a bold statement to make you may think, as what is their to love about a world not geared up for those of us who fail to see as the sighted world can and does? Thanks I guess to the severity of my KC I associate more as someone who is blind in a once sighted world...

I invert colours and use Zoom Text for large text portions to both read and write for me but magnify everything as standard. on my iPhone I use voice over, then again I am legally blind due to my KC n other complications so my sight is far worse than most whom have KC on its own.