Search found 2201 matches

by Sweet
Sun 16 Jun 2013 3:03 pm
Forum: General Discussion Forum
Topic: Incidence of KC in families
Replies: 9
Views: 3092

Re: Incidence of KC in families

Hello there! I was diagnosed with KC aged 14 and my identical twin sister was diagnosed 7 years later. I have had a corneal graft, but my sister hasn't. There is nobody else apart from my sister who have KC and we have completed the genetics study at Moorfields. This took a lot of encouragement as m...
by Sweet
Sun 16 Jun 2013 2:55 pm
Forum: General Discussion Forum
Topic: Dua's layer discover exciting new part of the eye!!!
Replies: 3
Views: 1786

Re: Dua's layer discover exciting new part of the eye!!!

It was really amazing to find an article written in the Metro which we read on the way to the forum! It was even better when I informed two of the speakers about it and was told by one of them how brilliant it was to come to our group as a professional and learn something new from us!! Wow!! It does...
by Sweet
Sun 16 Jun 2013 2:43 pm
Forum: General Discussion Forum
Topic: Manchester Conference
Replies: 8
Views: 3318

Re: Manchester Conference

Thank you everyone for the lovely comments about the conference, I had a brilliant day! Lia, invaluable is a lovely positive word, thanks! I get a lot out of talking with other people too. Thank you to the four speakers who gave excellent presentations, I learned so much! It was good to actually hav...
by Sweet
Sat 23 Feb 2013 3:51 pm
Forum: General Discussion Forum
Topic: Charlotte's patch
Replies: 2
Views: 911

Re: Charlotte's patch

Aww lovely patch, will be brilliant with loads of sparkles!!!!

Hoping that Charlotte's eye is healing well, it sounds like it is on the right track. Being sensitive to light is awful but it does settle down.

Take care, love Claire Xxx
by Sweet
Fri 22 Feb 2013 1:32 pm
Forum: General Discussion Forum
Topic: New to forum
Replies: 3
Views: 1174

Re: New to forum

Hi Nelzkhan, lovely to have you here. It is hard when deciding about having a graft, it's good to read up on it so that you feel more prepared and able to decide what you want. I definitely didn't want to have surgery, but in the end I wasn't able to wear a lens in my good eye because of an ulcer so...
by Sweet
Fri 22 Feb 2013 12:55 pm
Forum: General Discussion Forum
Topic: Corneal graft (hopefully a DALK) on thursday.
Replies: 11
Views: 2799

Re: Corneal graft (hopefully a DALK) on thursday.

So glad that it all went well! I had a DALK 8 years ago, though it seems like only yesterday! A lot of friends here have got really good vision which is brilliant! Hoping yours goes as well too. Mine went well but my vision hasn't really improved. This is because I have a lot of scarring which is st...
by Sweet
Tue 10 Jul 2012 4:53 pm
Forum: General Discussion Forum
Topic: URGENT How we can make sure money goes to research into KC
Replies: 7
Views: 2240

Re: URGENT How we can make sure money goes to research into

Yes I did this when you emailed it, very easy to do. Hoping that others do it as well!

Love Claire Xxx
by Sweet
Wed 25 Apr 2012 8:53 pm
Forum: General Discussion Forum
Topic: Piggyback user problems.
Replies: 10
Views: 3557

Re: Piggyback user problems.

Moorfields told me that it is quite common! Very painful is all I can say and having done it in exactly the same place twice I am trying very hard not to do it again!! I honestly thought that the shape of my eye had changed and I needed a new lens fitting. I know they tell you that piggy backing can...
by Sweet
Wed 25 Apr 2012 8:45 pm
Forum: General Discussion Forum
Topic: Participants Wanted: Corneal Graft Experience Questionnaire
Replies: 17
Views: 4159

Re: Participants Wanted: Corneal Graft Experience Questionna

Hi Zoe,

Being a nurse working with the NHS I would be more than happy to help you :D Best of luck with your studies!

I had a graft in 2005.

Thanks, love Claire Xxx
by Sweet
Tue 24 Apr 2012 5:08 pm
Forum: General Discussion Forum
Topic: Bad decision
Replies: 3
Views: 1515

Re: Bad decision

Andrew,

Brilliant, sounds like you had a great time! Just think of all the rest your eye had without a lens so it wasn't so bad :D

Sorry I haven't been here for a while, am sinking with work :( Hope to talk to you soon, love Claire Xxx

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