UK Keratoconus Self-Help and Support Association

Inevitably members turn to the forum when they have an issue, problem or concern. For those of us that have not have a graft yet, but might need one in the future it would be really helpful to have a range of experiences of those who have gone through the process - particularly when it went well, as...

One of the side effects of using sceleral lenses can be a build up of mucus under the lens, often floating in the saline. What strategies have you found for dealing with it? How many times a day do you need to clean and re-insert your lenses? Is one eye worse than the other? What do you clean your l...

How about 20+ years, but I am sure I am not the longest! The blanched ring is not an uncommon problem, I would encourage you to get it checked at your clinic. Often issues don't show up until after a few hours of wearing and can usually be sorted with an adjustment to the fit.

Hi, first you do need to be realistic about building up wearing time. If you are consistently getting an uncomfortable feeling after you have been wearing them for a while I would recommend seeing your practitioner again when you have had them in for a similar amount of wearing time. I think most of...

As one of your fellow Keratoconus Group members, you will hopefully be interested to hear that I am standing as a Patient Governor in the current Membership Council elections. If you are a member at Moorfields you should shortly be receiving by email or post your voting paperwork. Whilst clearly I w...

If we don't have one already, a list of hospitals with contact lens departments would be a useful addition to the site/group. Many hospitals have good eye departments and can be very helpful in an urgent situation but not all will have a full contact lens team. Here is the "starter": Londo...

I think you should go back to see your practitioner. I would be concerned if it was taking me 40 mins to insert. There are several things that could be wrong: fit, prescription. technique. Are you wearing specs over the top?

To answer your questions. 1. There is a minimal layer of saline between the lens and your eye, you probably just don't notice it when you remove them. 2. Many wearers do find that taking them out for a refresh improves vision and comfort. From time to time the saline can become cloudy. I would alway...

This document A Guide to Scleral Lens Fitting is clearly intended for practitioners. However, as a patient, I found it most informative and helps understand some of the considerations and factors to be weighed when we are being fitted.

The good news is I have solved my own problem.

Oté have told me that they are aware of the problem and the bottles are being changed.

Hooray!