UK Keratoconus Self-Help and Support Association

There are lots of questions raised here, but as a long term scleral wearer, I'll try and cover some of my experiences. First, there is "getting used to them". There are two aspects to this - your sense of "feeling" the lenses and the actual comfort. If they don't settle down they...

Hi, I had my first and only transplant just over a year ago. It will be helpful if I explain my background because everyone's situation is different. I had KC in both eyes for 30+ years but both had been managed with progressive refittings of different contact lenses over the years. The vision in my...

I have just bought some Coopervision preservative free from Vision Express, same price as Boots own make, and am wondering if anyone has any experience of using it with sclerals, the bottle just mentions soft lenses and rinsing things..I don't want a repeat of the Savers problem. So how was the Coo...

My experience is that minor issues with discomfort settle if you leave the lens out for 24, preferably 48 hrs. Wear it for a short time, maybe half what you normally would and build the wearing time slowly again over a few days. If the discomfort returns it's time to return to your opthalmist. There...

This is a very common problem. I don't know how long it has been since the third lens was fitted? Ideally, I would give it a couple of months for your eye to adjust and don't wear it for too long too soon. The change you notice when you have been wearing it for a while is because the lens settles ba...

When I go overseas on holidays I have to bring 3/4 suckers carrying one in my pocket, one or two in my luggage that goes onto the plane and one that goes into my luggage in the hold. I wouldn't mind finding somewhere that stocks the ones I use online so I can buy a dozen more. Many of us don't use ...

Scleral lens wearers fill their lens with saline before insertion. Some can use saline with a preservative others need to use a preservative-free product.

Perhaps there is a story to which product you use and maybe it has changed since you have been wearing sclerals?

For you and others who might come back to this post later, when you are referred (usually by your GP on an optician's recommendation) to an NHS hospital you do have a right to choose where you go. In your case you could have gone back to your GP for a new referral elsewhere if necessary. You should ...

At just over 4 months after the graft we opted to fit a scleral lens. I was told the cornea was regular enough to take an RGP but as I already have a scleral in the other eye that did not seem a sensible option. Comfortably achieved 6/9 and a few letters at 6/6. Steriod drops backed down to twice a ...

I had my graft in January and all has been good since. In June the plan is to try a contact lens fitting. What have been others experiences and which lens types have you tried / preferred? I have negligible astigmatism and my graft is central. A scleral seems the obvious choice as I have used them b...