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by Anne Klepacz
Wed 27 Jun 2018 10:26 am
Forum: General Discussion Forum
Topic: Dalk partial transplant and contact sports?
Replies: 1
Views: 44

Re: Dalk partial transplant and contact sports?

Hi Nick and welcome, I know nothing about combat sports and the sort of protective head gear that's available. But your doctor probably explained that a grafted eye is always going to be weaker, and any blow to the eye would threaten the graft. So the strong advice after a graft is to avoid any cont...
by Anne Klepacz
Wed 27 Jun 2018 10:17 am
Forum: General Discussion Forum
Topic: KC Group conference 2018
Replies: 0
Views: 33

KC Group conference 2018

Members who are on our mailing list should all have had details and booking forms for our one day conference in Birmingham on 15th September. https://www.keratoconus-group.org.uk/index.php/ninth-keratoconus-conference/ If you haven't received a booking form, but are interested in coming, please e-ma...
by Anne Klepacz
Sun 24 Jun 2018 2:58 pm
Forum: General Discussion Forum
Topic: Advice needed!
Replies: 3
Views: 98

Re: Advice needed!

Hello Andrew and welcome, Are the soft lenses you wear ordinary soft lenses or ones especially for KC such as Kerasoft? You'd probably find your vision improved with either specialist soft lenses or with one of the types of rigid lenses that the majority of us wear. Soft lenses drape themselves to t...
by Anne Klepacz
Sun 24 Jun 2018 2:50 pm
Forum: General Discussion Forum
Topic: RGP lenses and hybrid lenses
Replies: 1
Views: 57

Re: RGP lenses and hybrid lenses

Hello and welcome, Most of us get our lenses from a hospital contact lens department, where you'll normally find a wide range of lenses and optometrists who have a lot of experience in fitting people with keratoconus. Most of the large city hospitals have their own contact lens department - eg Birmi...
by Anne Klepacz
Sun 24 Jun 2018 2:41 pm
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 198
Views: 92356

Re: To all who have joined this forum recently

Hi Karina, I'm sorry your daughter has had so much distress. Waiting 2 months for replacement lenses isn't normal for corneal rpg lenses (though it might be different for some of the more specialised lenses such as sclerals). But whereabouts are you? I'm asking because here in the UK medical insuran...
by Anne Klepacz
Wed 20 Jun 2018 7:08 pm
Forum: General Discussion Forum
Topic: KC Group at Sight Village
Replies: 0
Views: 28

KC Group at Sight Village

A reminder that the Birmingham Sight Village event is on 10th and 11th July, this year in a new venue. http://www.qac.ac.uk/exhibitions/sight- ... yqkp4onaRV
The KC Group will have a stand at the exhibition, so if you're coming, do come and say hello!
by Anne Klepacz
Thu 14 Jun 2018 9:38 am
Forum: General Discussion Forum
Topic: Long term scleral use
Replies: 13
Views: 1053

Re: Long term scleral use

So glad you've got there! And thank you for this update - it's really good to hear the end of the story on this forum. The difference between your first post on this thread and now is, I hope, really encouraging for others trying to get used to wearing a scleral lens. All the best!
by Anne Klepacz
Tue 12 Jun 2018 7:15 pm
Forum: General Discussion Forum
Topic: Complications of CXL. Advice needed please
Replies: 9
Views: 366

Re: Complications of CXL. Advice needed please

Just to answer your questions about what a graft feels like. No you can't feel the stitches. The eye feels a bit 'gunky' for the first couple of weeks and can be more light sensitive for a while. But after a couple of weeks, no one looking at you would know that you'd had an operation. The hospital ...
by Anne Klepacz
Tue 12 Jun 2018 1:16 pm
Forum: General Discussion Forum
Topic: Complications of CXL. Advice needed please
Replies: 9
Views: 366

Re: Complications of CXL. Advice needed please

You'd really need to ask about that at Moorfields IF they tell you that a transplant is the only option - they may have other suggestions given the amount of experience they've had with CXL now. But what scares you so much about a transplant? I've had 3 now (2 in my 30s and more recently a regraft i...
by Anne Klepacz
Mon 11 Jun 2018 2:13 pm
Forum: General Discussion Forum
Topic: Complications of CXL. Advice needed please
Replies: 9
Views: 366

Re: Complications of CXL. Advice needed please

Hi Emma, If you put 'corneal haze' into the search you'll find quite a few posts on the topic though as far as I remember, there was only one case of haze persisting as long as yours has. It's really good that you're being referred to Moorfields - they've now done thousands of CXL treatments over th...

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