UK Keratoconus Self-Help and Support Association

Normal stuff like your hand on your forehead accidently going over the eyelid - I was curled up for 8 hrs in searing pain. I just want to tape the eye shield onto me permanently at the moment not just at night. The level of sensitivity and pain is scaring me. They could offer no explanation to me fo...

The pain sensitivity in this eye is extreme

May I suggest x2 threads one for positive experience of grafts and one for negative as people need access to both accounts

But your pain never went..how do you manage sneezing/coughing?

It is a tough condition, however you feel is justified and it's OK to feel afraid, angry & upset - give yourself outlet for that. The mistake I made in my youth was to hold it all in and be stoic, so let the pressure out however you need. Lenses are an adjustment, be patient, build up the wear t...

Did it continue for you? I'm asthmatic, hard asthma cough would have me screaming with pain I can't even take the other eye flinching with the RGP the pain goes into the re-grafted eye. Even a slight knock on the head hurts the re-grafted eye.
How can that ever tolerate a lens?

I feel for you, you've suffered a lot and I can appreciate why you feel anxious. I hope it's not another rejection episode. I'm thinking of you

Has anyone experienced re-graft extreme post operative pain, then settling but a sneeze or cough really hurting?

Hi, anyone used Blink Total Care with RGP's?
Unsure is this to alternate with Boston or weekly?
Thanks

They most definitely do, but the expectation of stoic positivity hinders any research in this direction