UK Keratoconus Self-Help and Support Association

I've still got six or seven (if I remember rightly) stitches in my youngest graft. They're no problem (hope I haven't jinxed myself there) and from the way they talk down at the hospital I'm not expecting them to ever take them out.

Well, you can't be the first person to live in two places while managing an on going medical condition. I'm talking totally off the top of my head here as I've never lived outside of Leicester let alone the country, but when I was expecting my first daughter I was on some scheme or other where I car...

Brink of collapsing???? Crikey Sarah. I hope they get it sorted asap, and without any further stays in hospital.

Don't over do it this weekend. To totally mangle a familiar saying - a graft is for life, Christmas presents can wait.

Sarah M wrote:ive stopped rubbing my grafted eye, which is sooooooooo hard!

Until, like me, you figure a way out of doing it without hurting/disturbing your graft. And no I'm not telling you the method I came up with.

Sorry Claire, we're not helping at all are we?

I have to admit to being a big eye rubber. :oops: For me to not rub them is like not scratching a really irritating itch - impossible. I've no tips to pass on because I have none - when the need to rub arises I rub. :oops: I feel like I've just admitted to doing something really naughty. :lol: Hello...

I'm dangerous walking at night so if I did drive there's no way I could at night. I almost walked straight into someone's pond once as I thought it was just a block of different colour paving slabs in their patio.

Some can bother me. It depends on the sort of lights and if they're flashing. For some reason flashing lights are a real problem to me. :( I hate it if I'm sat in a car in a queue of traffic and the car in front has its indicator permanently on. I'm never sure if that's a KC thing or an Ali thing - ...

I've not been swimming since I had my grafts. For years and years afterwards I couldn't even go into the reception of our local pool as the chlorine fumes in the atmosphere made my eyes stream. :( As I was never a keen swimmer I wasn't that bothered but it meant that I missed out on watching my girl...

How's your eye today James?

Even though I know I ought to go I never like to bother them at the hospital unless I'm pretty sure something's wrong either. Especially at weekends when the eye casualty here is shut and they have to call someone in.

I can sympathise because I had a terrible time with my rpg's, but go on Simon, give it a go. :D What have you got to lose? But more importantly focus (no pun intended) on what you could gain. :D Hopefully you'll find a fitter who'll work with you to find something that works for you, and give you th...