UK Keratoconus Self-Help and Support Association

Thanks for all your thoughts, which weren't unlike my own. Sent him to work today armed with the leaflets from this site for employers and and what the law can do to help him. Yet again though he was left waiting for someone to call him to the meeting and yet again it didn't happen!! t really is get...

Hi All Hope everyone not doing too bad!! Not posted for a while now but my son had cross linking done in his left eye in February of this year. He had a tough time ending up with a corneal scratch that took a number of weeks to heal so that he had any vision at all in that eye. He has now been infor...

Hi All Not posted for a bit. Son had crosslinking done in left eye in February. Had quite a few problems but these seem to be behind him now so won't dwell on them Had an orb scan done yesterday but not seeing consultant until August so was wondering if anyone can make any sense of the attached scan...

Thank Mikkey your kind words and thoughts have cheered us both up.
Regards
Eileen

Thanks Mikkey. We were back on Friday yet again to Consultant. Said it is starting to show signs that may be healing but has left bandaged contact lens in and to continue with antibiotic ointment and steriod eye drops. Wants to see him again on Wednesday to take the lens out and flush eye. Hopefully...

Hi Liz Yes we see the Consultant all the time which is good because he seems to remember us each time we go. The annoying part about waiting long times is that I have to take time off work to go with him and with it only being the beginning of the year if it carries on like this will end up with no ...

Hi Gabriela He has it done at St. Pauls Eye hospital which is in the Royal Liverpool Hospital. Phillip has never been able to tolerate a lens as he only had to wear it in one eye. He has been sort of managing with glasses based on the fact that his other eye gets better than 20/20 vision with correc...

Hi Gabriela Phillip had the CXL done on 10 February and so far I am beginning to wonder whether it has been the right thing to do. Before having it he could read the top letter with his bad eye but now cannot see it until it is put less than 2 feet in front of him and has permanent blurriness. He ha...

Thank you all for your kind thoughts. Sorry about ranting before just needed to get it out of my head! Chris - Phillip's uni are being very supportive at the moment. Most of the work is available on the extranet so he can pick up notes but what is missing is the invaluable face to face lectures and ...

Sorry about the subject but thats how we both feel at the moment :( Basically Phillip had cross linking done on 10 February 2011 and for the full week after this was in agonising pain with light and not being able to open the eye properly. At the follow up appointment on Friday 18 February 2011 was ...