UK Keratoconus Self-Help and Support Association

also on the subject of sclerals ---
I havent been able to get the lens cleaning solution we have had for 2 years, MIraflow.
Can anyone suggest the best alternative, or a good source of supply?
Im nervous of trying the one Boots recommend without experienced KC backing!
Kate n Dale

give sclerals a try - fitting not too bad. when Ken fitted my sons the best bit was Kens tie being totally fluorescent by the end of the session!! Dale has had sclerals for 20 months, built up lens time 3 hrs per day week one, 6 hrs week 2, 9 hrs week three and dead easy. He has only had 5 days ever...

Hi we use steripod tubes too - big box on prescription . Open one each morning , use to rinse and fill the lens. keep it upright in the day (drop it in a corner of the box) and put some drops in teh eye if its tired or dry. We use up the rest of the pod to rinse the lenses at end of day (using miraf...

DEAR ann and penny PHONE ME EVENINGS ON 01452 421328 - soon!! hi Hi Im the mum of Dale - 19, Downs, heavy, challenging, little communication . Dale drove me insane at 15 , very miserable, argued, made me cry etc moved to boarding school - it wasnt till a lot later i realised that it was depression p...

Hi I have read that KC is more common in those with skin difficulties, and has different incidence in different races so it seems the predisposition is in the gens, or a problem with a metabolic pathway? From what Ive read I dont think its caused by the things you do. I was told that its linked to e...

john My son (Downs) is 19 now and in the 4 years since first hydrops - 'out the blue' as you say - we have come to know enough to get by! happy to advise. would be pleased for you to ring evenings on 01452 421328 The first year seemed pretty dark but with good quality help Dale now is back with good...

My son is nearly 19, KC was diagnosed when he was 15 and we too thought lenses were not an option - Dale is a difficult character - charming but difficult!! We accepted the idea that he was going blind for quite a while till i recovered from the grief and got back into Warrior Parent mode - found ou...

Hi my son wears sclerals - sometimes, not always gets grot in there with the saline - in the early months my insertion technique seemed to be guaranteed to scrape the eyelashes clean and scoop up anything in the area! Also getting smeary by the third try despit much cleaning and restarting... NOw i ...

I have a son with Down's sydrome. He is now the proud wearer of two sceral lenses which have improved vision A LOT.
Would be pleased to hear from anyone
or pass some ideas on.