UK Keratoconus Self-Help and Support Association

I had mine done at 254 microns and it worked to stabilize my cornea. This can be done without removing the epithelium. I went to Dr. Swanson in Mexico, he will do it on very thin corneas if you are out of options. I had it done in that eye twice.

I had Intacs and then C3R on my "good" eye without having the epithelium removed. I had the same procedure done on my "bad" left eye with a corneal thickness of 254. It increased to 369 and Intacs were done on that eye. Please note that my case was highly unusual and I'm not sure...

I paid the bill. . . only because if something did happen to me, this would likely be the doctor called to do an emergency transplant. He's a bit full of himself. I have most of my records, they are published on the internet. My story is published here: http://www.keratoconus-group.org.uk/forum/view...

I have a wicked case of PMD. From what I understand, the difference is the cone is usually offset and not centered on the eye, and there is an extremely flat band. I notice that some objects at a certain angle have a very sharp, defined edge. My PMD responded very well to Intacs and C3R, but the rec...

Let me share something about this. My US cornea surgeon did not tell me any of the risks, nor that he knew I had a very high likelihood of rejecting in two years. It was even doubtful whether a first attempt could be done given that the area directly above my blood supply was so thin, it looked like...

I need to clarify that. . . I believe Swanson was quoting US statistics on transplant failure, not worldwide. The US health care system is a dismal failure, in my humble opinion. My insurance company actually fought with me about getting a Lamellar and would only pay for a full transplant. They refu...

I know that Dr. Swanson in Mexico deals with many patients who have developed KC in their transplants, this seems to be a growing problem. Your story is the exact reason why I refused a transplant and went the experimental route. Man, this just burns me up! I think it is an important story to get ou...

Have you tried any other eye drops? I use Acular which is an anti-inflammatory. It makes wearing my lenses bearable. I also find that using allergy drops (Patanol) also helps keep things in check. When my eyes hurt like that, it usually means I had my lenses in too long. Since I only have discomfort...

I had C3R done once in my good eye, twice in my bad, with the second time having the epithelium lasered off. This is just my opinion, but I would not have it done unless I had no other options. I would definitely do the Intacs first as it is relatively reversible (a matter of semantics at this point...

Ahhh, I see, thank you for clearing that up. Health care is so different in various countries. I had to go to Mexico for my Intacs because I could not get C3R done in the US. I was able to shop around for doctors, but I pay all my costs out of pocket, which is several thousand each year. I figure it...