UK Keratoconus Self-Help and Support Association

Many thanks for all your comments. It is certainly interesting how we all cope differently. I will now give consideration to not wearing the shield although I have never found it uncomfortable and so this is perhaps partly why i havent rushed to get rid of it. I have found it quite confusing at time...

Following Graft surgery how long should you continue to wear the eye shield at night The instructions I come out of hospital with suggested 2 weeks but I am sure I have read that it should be longer than this - what has anyone been told or done themselves. Now nearly 5 weeks post graft and I still w...

Hi Steve Thanks for doing this blog, I had my first transplant just one week before you ( on the 15th Aug) and like you found it difficult to find information of just what to expect both just after the op and over the longer period of recovery. It is great to have someone to 'compare notes' with . I...

I agree, and should also include the ingredient list My husband is diabetic and my son has been severely allergic to all nuts since he was 3. Checking the labels has always been a nightmare for me but is critical as it could literally mean the difference between life and death. Fortunately my daught...

Chris Thank you so much for your response, you certainly covered lots of things i hadnt even considered (like making the GP appoint in advance) Like i mentioned in initial post ,my head is in a complete spin at the moment, so the more things i can write down or arrange even so far in advance the soo...

Have struggled with poor vision and problems with lenses for some years, the time has come for the graft to my right eye which is booked for Moorfields in October. Having expected wait much longer for an actual date this has set my head in whirl of trying to organise everything from travel, hotels, ...

Does anyone have any ideas or tips for fitting scleral lenses. I collected my 1st pair just before Christmas but no matter how many times i try I keep getting airbubbles where the saline has spilled out. Either that or the front of the lens is fogging- i cant tell which as i my vision is too blurred...

Will be interested in any response to this as I am in the same position. I had a first appointment at Moorfields this week and have to go again next week.