UK Keratoconus Self-Help and Support Association

Thanks for the reply Longhoc I was thinking of a least getting a copy of my history file just in case it gets lost and your right how can they refuse this? though tbh I'd prefer the new hospital to start from scratch anyway my current notes from local NHS are probably no help to them at all. Also I ...

Is this process easy? I'm preparing myself for plenty of time on the phone and hoping my notes dont get lost in the post.

Is there anything that I can do to ease this process? or am I in the lap of the NHS gods......?

great vids, I have shown them to friends and they now have a greater level of understanding due to the simple explanation of a serious matter.

good work.

Thanks Steven I have mentined other forms of contact lenses (from my own research) to my local NHS but it' just became embarresing in their lack of knowledge on the matter. At no time has any consultant made me aware of any other treatment apart from gas permiable lenses and I dont think thats good ...

Thanks for that, every time I’ve been to the hospital and mentioned other forms of treatments it’s been ignored and I get the feeling that they can’t wait to get me out of the door and see me in sic month’s time than be honest with me in what they can offer. Even if they told me the truth and advise...

I don’t want to sound like I want to just sit back and let other people provide me with all the information I need, but I have no idea what the process would be to get the ball rolling to see a KC specialist in my area

Who do I need to see to get access to other types of contact lenses? I’ve just had another frustrating appointment with the hospital (again the appointment was with a different optometrist who has never seen me before). What s the process of an appointment with a KC specialist (outside of the NHS). ...

Having recently been to my local opticians for my yearly check up and photo of the back of the eye I was amazed to see how much better equipped they were compared to the hospital. No old school frames on face in this place a high tech machine that rotated different lenses in front of my eye. Now thi...

next question, whats the best method for straight onto the cornea? i cant get my eye to look straight ahead at the point i want to put it on

its driving me mad

thanks in advance.

thanks for that some useful stuff in that reply, I have a check up this month so we let you all know.


bet you cant wait