UK Keratoconus Self-Help and Support Association

I don't know if I'm "tempting fate" by saying this but Davids eye is starting to look a lot better. A lot of the mist has gone and the swelling seems the have gone down quite a bit. Can anyone tell me if this is normal chain of events? It was April 1st when he went into hospital and had st...

Hi Rosemary, Thanks very much for all your help, I will certainly try all of your suggestions. I hadn't realised that hydrops could occur again and again. We've only had one appointment with the eye infirmary other than the stay in hospital and to be honest I'm still feeling my way round. I think ga...

munch bunch

smell

Hi Liz, you're absolutly right it is only by talking to people who actually have this condition that I know I'm geting the right advice. After all, if you all don't know who does? I must say the panic has subsided a bit since I've read a lot on this site. It's good to be able to read peoples experie...

Hi Carleen, It's nice to talk to a member of our "special" group. Last night I put a cold face cloth over his eye for a few moments and it must have felt better or he would't have tolerated this for a second! Getting the cream into his eye is damn near impossible to be honest but like ever...

water

Thanks very much for all advice. I found the article on KC and hydrops very interesting and helpful. David has just come in from school so I'd better go and feed and water him or we'll all be in trouble!!!!!! Thanks again.

I've just looked at the http://www.lookupinfo.org and found it very helpful. The more I read the more convinced I am that his Self Harming which started in 2002 could have been a result of this condition starting. My son has been on very strong drugs for 8 years to stop him self harming and I'm horr...

Hi Everyone, David does infact have hydrops (a fact I had forgotten until I saw it in your reply). I have just read an article by some parents who took an holistic approach to helping their sons condition. Is this something the group know anything about? As you can tell I'm still very new to this an...