UK Keratoconus Self-Help and Support Association

Good luck Simon. This is very interesting to me as my son, I hope may be suitable for the same treatment on one of his eyes. All the best to you

Again, thanks all for your interest and replies. My son has decided to make an appointment for an assessment with Ultralase (who did his original Lasik surgery in 2000) and fingers crossed they will support the treatment and management of his KC under their Lifetime care guarantee. Not sure how he n...

Hi, I wonder if those with more experience could help me sort out my head with 'what to do now'. It's been suggested to me that Ultralase (where my son had lasik in 2000) may be the best place to go rather than pursue the hospital route and that they may even be prepared to see him under the 'Lifeti...

Thanks for all your replies. Nottingham is where we live. I understood from my previous thread on here asking about 'where are the centres of excellence for KC' that the QMC are a respected hospital for KC care, hence this experience being particularly disappointing. We had arrived there with a very...

For context firstly I need to explain, I don't have KC but my son does. He asked me to go with him to the long awaited hospital consultation. I was prepared, had read up on KC, got my list of questions and off we went. It was clear on arrival at 3.20pm that we would be in for a long wait, there were...

Thanks all of you especially Andrew for the helpful list of questions. Are you able to see now Andrew? The bit about being registered blind hit very hard - I'm so scared this will happen to my son :( Re 'how serious is the KC' question. Please can anyone tell me how this is 'scored'? Is there some k...

Hi All, Hope you are all doing ok with this neverending winter-time :roll: My son has KC and has an appointment in March (his first one) to see a consultant at Queens Medical Centre Nottingham about it. He has asked me to go with him as he feels fazed in medical scenarios and I'm not afraid to ask q...

Hello Pepe That's great that you have a relative who is a Director of an NHS Trust who understands the procedure for accessing the 'stats' on centres of excellence with regard to KC. It would be most interesting if you would seek that feedback from your relative and share it on the forum :) thanking...

He could ask how advanced his KC has become, and whether there isany sign of the condition in eye #2. Yes, I think that will be one of the questions Andrew :? I hope he sees someone who is well versed in the different types of lenses and the other treatments available which may help. Having a good ...

Once again I thank you Gareth for sharing your knowledge. Blimey, KC is like a giant apple. You take a little bite (of things to learn about it) only to find that what you know is only a tiny part of a humungous and changing apple!! :shock: You have confirmed the impression I've already formed with ...