UK Keratoconus Self-Help and Support Association

Thanks GarethB. Yes Charlotte does seem to have developed coping strategies and I thank goodness that she has, I think that I myself need to follow her lead in that because I don't feel that I am coping inwardly - feel helpless at best/crushing guilt at worst. My priority now is for that eye to clea...

[list=][/list he added that its highly unlikely that Charlotte's cornea will ever return to normal. soooo, not nice to hear but we already knew that pre hydrops Charlotte's left cornea was far from normal. Bothers me that he said its the worse he has ever seen because I have read lots mainly on here...

well no infection which was my major worry. no scleritus either thank god. I told Mr Naylor that I was concerned about pos of that too. what he did say tho is that it is the worst case of hydrops he has ever seen. he said that the red is slight blepheritus from all the tearing up that Char's eye is ...

Thank you Gareth. You desc :oops: ribed it so well - that's what I meant. sat out side cas waiting til appt time. I must admit I did wonder myself whether the nozzle of the lacri-lube has come a little too close for comfort at some time. I am a good aim but she has it in at day centre and she can be...

So this morning I've been on the phone to eye clinic A&E and they've given Charlotte an appointment for half 11 this morning. The reason being that last night I noticed that Charlotte's left eye -the one that is still v. cloudy from the hydrops 4 wks ago - has some red around the bottom of the b...

thanks Claire. I will pass that on to Charlotte. she likes to hear what other KC folks have to say!

Hi, Well it's coming up 4 weeks since Char's hydrops, in the past couple of days we've noticed that the lumpy lid is much reduced so hopefully this is the start of the healing for her. Very very sensitive to the light tho and she's sporting an array of trendy caps, very important for such a fashion ...

especially around the edge of the eyelid where my eyelashes are. Well you've just described what I think my daughter Charlotte is trying to explain to me about the feeling around her eye/lashes, so thank you for that :) I bathe Charlotte's eyes with (often cooled boiled water for hygiene) but mostl...

Nah not really. Charlotte won't entertain a patch of any sort but she is wearing some rather trendy shades when outdoors as the light is bothering her eye somewhat. It's basically a waiting game and praying that the residual scar not too central for eye when hydrops cleared.
Angie.

Hi, My daughter just had her first hydrops too, also left eye, it's rough. She has Down's so lots for her to cope with! You'll see from reading on here that your hydrops will just take its own time, seems to be no fixed guidelines for the darn thing! Hang on in there! But still (and I make no apolog...