UK Keratoconus Self-Help and Support Association

Wow! Char did amazingly well at the eye clinic on Wednesday. Agnes got the (RGP) lens in her right eye with a fair bit of coaxing; Char blinked a couple of times, looked around the room and very excitedly said, “Everything’s clear and big!” RESULT!! She was fine; she kept it in for about 20 mins or ...

Oh wow! This is amazing. Thank you so much for finding that!! Angie

Hi. I'm a parent member (my daughter Charlotte has KC), we only found out on Nov 5th. (see my prev posts if necss). I can understand your low mood totally. As a mum I was absolutely devastated by the diagnosis at first but now I have come to realise that the future can still be as bright. Re your de...

The story so far: Charlotte was a little star! after a LOT of coaxing Agnes (the optometrist) got a lens in her right eye and measured it and did all the "doings" with the instruments. Char coped really well, I was so proud of her. No crying, or anything like that. She was very nervous but...

Yes, all the best from our house too. Youtube is great but maybe not just before surgery

It's the night before Charlotte's contact lens tryout. She's been chatting about it with us on and off for the past couple of days. Today she drew a picture to give the optometrist tomorrow morning, she's called her drawing, "Charlotte's Eyes". She drew herself with her eye's wide open and...

Hello and thank you for the warm welcome. Anne, your name was mentioned to me last week by Brian Melia at Hull Royal Infirmary, he was extremely reassuring and it was he who suggested that I contact the self help group. I have found the website "look-up", after a general google search and ...

Hi. I am posting here on behalf of my daughter who is 17 years old. She has Down's syndrome and has recently been diagnosed with Keratoconus. She has worn specs since she was four years old as she has a high astigmatism and myopia. I had noticed over the past year that she had gradually begun to loo...