UK Keratoconus Self-Help and Support Association

Loopy-Lou wrote:You're doing a great job as Charlotte's mum, I've always been impressed by your posts.

Aw thank you that means a lot x

nice to read a posts from you again, to be honest i would go for broke, sometime down the road you are going to be face with this, putting it off for a couple years or so is not going to help. who knows what tomorrow would bring in terms of health or money situation. You could ask your GP towns dow...

thanks for that. I'll update after Tuesday. fingers crossed!

Thoughts, pointers, hints or advice all welcome: Hi, Well here we are, 4 months since Charlotte's hyrops (left eye), to bring this episode of her story up to date briefly: Charlotte is 20 yrs, down's syndrome, active, cheeky, pretty little slim thing, diva of this parish :lol: On Tuesday I am taking...

Thanks Gareth, yes my thoughts exactly re the softs. I had all these thoughts after the appt and then kicked myself for not querying at the time but I was concentrating on Charlotte at the time :oops: I'm normally more "on the ball" but prob was still reeling from the events of the past fe...

thank you Chris. that is a big help. sometimes it does good to get another kind of perspective on these things. that was a good idea to monitor and keep a recky of good eye/bad eye days too. so thank you again for that. we really do appreciate you taking the time to post. Charlotte is a very feisty ...

Hi, Well it's now just over 2 months since Charlotte's acute hydrops (lefty) and from my prev posts some will know her and that the "cloud" began to clear dramatically quickly at the 6 week point. As said earlier there is a visible opaque vertical scar centrally and only a very tiny bit of...

thanks, it's difficult for her, she's very active and is on the go all the time, here there and everywhere, enjoying her activities and stuff. Never complains much if at all. loves her dancing and singing!

Mousework wrote:just point to a window

mmm yeah but Charlotte needs more precise re size etc given her LD cheers tho,

GarethB wrote:Larger resolution pictures sent.

received with big thanks, goodness me! they're very in-depth aren't they?
Thanks for taking the time to send them, really appreciate it.
Angie and Charlotte