UK Keratoconus Self-Help and Support Association

My son is 20 and today we were at the hospital, the doctor wont give him a cornea transplant till all "contact lenses are exhusted", his words. Was wondering what lenses everyone wears, anything new out there? Jordan has tried RGP, piggy backing, semi sclera, hybrid and kera soft which he ...

i am a nursery nurse with moderate KC and I wear glasses. I have recently started a new job and just say I have a rare eye condition. Im not very good at putting eye drops in, the drops, most of it runs down my face, came back from my break the other day and one of the children gave my a hug cause t...

Thanks Andrew and Chris for the info. Jordan has been wearing contacts for over 2 years, trying different lens and eventually finding what he can can wear with comfort and giving him some sight. Although he was diagnosed 4 years ago, I also thought it was early to settle down. I havent seen my consu...

Was at the hospital with my oldest son (16) last week, 6 monhs since last time and there are still changes happening and they were hoping it would be starting to settle by now, but no. Cornea thickness is worrying me, left 410 and right 460, we have to return in 2 months and will discuss, if not sta...

Happy to help, there are 3 of us living in this house with KC, different ages and different stages.

Not been on for a while so trying to catch up on posts, so sorry for this being delayed. I live in north ayrshire and attend ayr hospital. A few years ago my sons eyes deteriorated very bad and the optom we were attending suggested a transferal to gartnaval but consultant at ayr said no cause we liv...

not been on of a wee while and i'm sorry to hear things haven't been good, all the best for your appointment today xxx

skeleton

so sorry lea and please don't be annoyed with yourself

thinking of you xx

kat

Both myself and my oldest son has KC. I don't remember rubbing eyes when younger, but prob did, have asthma and hayfever. Jordan used to rub eyes excessively, bad hayfever and mild asthma.
The debate goes on