UK Keratoconus Self-Help and Support Association

Hi Anne, Thank you for responding to my post. David is also complaining of feeling slightly nauseous when he is feeling dizzy. I am pleased that David is being referred to a neurologist but I also think that I am going to have to persuade David to return to the eye hospital to see the Consultant aga...

It has been quite some time since I lasted posted here. My 23 year old son who has autism and keratoconus has now given up on the eye hospital for the second time since he was diagnosed with KC. I just wish that we could see the same person twice who also had a basic understanding of his autism and ...

Been a long time since I was last here - mostly because of my own health issues - but my 21 year old son David who is also autistic, for those who remember me, is now telling me that his right eye feels as if it is at the point of exploding and the feeling is now waking him up from his sleep (someth...

Thanks again, When David FINALLY goes back for his new lenses I am going to ask quite a few questions. I hear what you are saying about intacs and budgets and I wonder if it would make a difference because David is also autistic? It might go either way but nothing ventured nothing gained and asking ...

Read up - and I now know what CR3 is I already knew - I know that now but not as CR3. So the question now is - is there anywhere in the UK where you can have this done?

Also what questions should we asking at the hospital about David's eyes and his options?

Thanks in advance.

Thanks guys You always help :D That's why I come here. Thanks for your honesty Gareth I can handle honesty I am one of these people 'who needs to know' I do not however have any idea what is CR3 is so can some please enlighten me. I will check intacks - in fact I will check out anything that helps. ...

Merry Christmas All, Been ages since I posted and it's not because I did not need to post. But life has a habit of biting you in the bum just when you don't expect it to. My Mum was diagnosed with Bowens Disease in her case an early stage of skin Cancer and my eldery Aunt - who has no one else local...

It's been so long since I posted here I feel guilty and see that I have missed a great deal :( I have reasons for not being here but I will post those elsewhere - however can I say that although I don't have KC my son does and even more so than his autism his KC is impacting on his life. I don't hav...

I have had a good chat with David and read him some of your replies. By Tea time his eyes were sore. He went up to his room and came back down wearing his glasses :D He's still not happy about it because he feels as if by taking them out he is being defeated :cry: but I think he understands that it'...

I was going to ask where I could buy Amo Lens Plus Ocupure Saline because this is the one that David can use without any irritation -however I see that it can be bought in Boots. Well not in my branch - but now that I know Thanks

Carole