UK Keratoconus Self-Help and Support Association

Hello, Ive not posted anything for a while, been busy trying to find a job and a new place to live etc. I am in the process of moving to London and hopefully I will be able to join you on the 12th, depends on when the paper work gets finnished for the flat...if its done in time then I will be just a...

Hi all, it seems i only ever come on when Im looking for advice..but I hope you dont feel like this, just been rather busy starting a new job and stuff. Had my intacts operation about 6 weeks ago. The last few days have been rather uncomfortable, it is not painful so much, but its not right either! ...

Thanks for the support :D , 6-12 weeks to stabilise, that gives me hope, suppose I was possibly being a little down on the old intacts, I think poss the vision is slightly better than it was now, but still not great. Jay-do you know when they are willing to try and fit contacts? Im going back about ...

Hello all and especially those who contacted me to find out how it went. Sorry I have not been in touch till now I have been busy searching for a job and have not felt too much like spending much more time on the computer. The intacts surgically went very well, feel reassured about the local op it w...

Hey, I know the feeling well..'if this is what my eyes are like now, what will they be like when im over 60 or even in the next ten years. Im only 23 and have already had one eye grafted and am about to have a less invasisve operation in my second eye. The RGP can be horrible, especially if your not...

Hey Kim, good luck with the second op, Im having my intacts on thursday, so every time those eye drops have to go in I will be thinking of you lots and sending happy cornea thoughts
x

Thanks for the replies and the congratulations! the eye Im having the op in is fairly advanced stage, it has not been grafted, intacts is a less invasive alternative. I have been through a string of different contacts, but now can only tolerate a lens for about two hours..if im not doing too much! a...

Hello al, I have not posted anything for a while, I have been in the deepest darkest depths of Devon and have only just returned to get back on-line properly. On Tuesday I had my first (there is two, one goes clockwise and one anti clockwise) running stitch removed form the graft I had in my right e...

Hi Paul, Im not sure anyone on this sight has had intacts as when I have posted in the past I have had helpful responses pointing in the direction of websites, but they generally dont have very much info on them, but no one has replied with thier experience. Im now waiting for an appointment for int...

Hi Chris, Thought I would reply too as I ahve recently had a graft and i too used to do the funny eye holding thing and developed a habit of pulling a slightly odd expresion, like a lopsided squint that i was not even aware of! but i also used to use my hand to help focus my eye. I had the graft on ...