UK Keratoconus Self-Help and Support Association

Thanks everyone appreciate the responses. it will be interesting to see how things go despite my concerns & i will report back as & when things progress

Hi Matt I am going for a lens fitting tomorrow (14 post graft) . I'll let you know how it goes. I know he is trying a RGP Any particular concerns you have ? Ian Hi Ian, good luck tomorrow :) my concerns generally are based on my previous experiences pre-graft which were tough to cope with, finally ...

Thanks Andrew, i guess if it works then thats great and it's good to hear you cope well with yours now. I will also be wearing glasses for my right eye but i guess if things went well i could possibly move back lenses for both....although the thought doesn't fill me with joy :( The optometrist tried...

Hi folks, kind of a similar situation to a recent thread by Joanne Poultney but i would appreciate some feedback on my own situ please :) .......25 months after i had my second graft & about 7 months since having astigmatic keratotomy i am now being given a hard lens to wear in a couple of weeks...

hi Zoe, if you are still looking for participants i would be happy to get involved. I have had a corneal graft in both eyes with a 10 year gap between them

Very good read, i have always been aware that eye rubbing was related in some way to having KC but that there was no solid evidence of exactly how this came about. The eye rubbing evidence is amazing...is it me being written about? :oops: :) i used to love rubbing my eyes it felt so good, now i just...

Oh i'm 100% with you Andrew on the use of steroid drops the potential risks do not outweigh the advantages at all :) . I do however feel that i have been using them much longer than needed as i have had no problems with the graft whatsoever. Anyway i'm not really a worrier so whatever will be will b...

Hi Ralph, Good luck with your graft hope it all works out

The unexpected things that arise from KC eh :| i was on prednisolone for my first graft in 2000 for about 10 months maybe? & i have been using Dexamethasone since last april on my latest graft :? each time i had an outpatients app (seeing an understudy) i would ask re the drops and told carry on...

mmmm soft lenses

I'd be happier sticking with glasses though given the option thanks again Lynn