UK Keratoconus Self-Help and Support Association

Ok my aim with the saline is bad and it takes me at lease a tube of amidose to get my lenses in. So I do use a lot and I have to clean my lenses frequently to get the wear time up, so I guzzle miraflow as well. I think the piece of paper that prohibits us getting full assistance is below. http://www...

Hello All,

Does anybody know why we get our scleral lenses subsidesed by the NHS and don't get any help with the cost of the extra soloutions that we use over and above what a person wearing ordinary contact lenses would pay?

Drew

So thats where all the chocolate I eat goes. Straight to the cookies in my brain. :lol: It's good to know that its normal to deal with this at my own speed and find out what and how I want vision for. As of yesterday I now have a new lens on order with another adjustment to my impression fit sleral ...

Thank you both. Lyn your spot on. I'm finding part time seeing again harder to deal with than working out how to be visually impaired. I really struggled to find proper support to deal with this as 'getting better' from a visual impairment doens't appear to be common enough for the NHS to address wi...

Hi Dolphin, Of course you can phone the hospital. I often phone when I have a lens issue and ask my optometrist to phone me back, we then have a chat and jointly choose what is the best course of action should be. As for glasess, I really sympathise I struggle to pay for my lenses soloutions and see...

Hello all, Its been such a long time since I posted that I thought I should let you know how I am getting on. Its over five years since I was diagnosed with KC; four and a half years since my first post and the journey I have had since then has been far from easy, but. I now have a scleral contact l...

If I had too right eyes I'd be blind. Stop trying to worry me...

Was trying to explain to an on line friend of mine wot KC is like.

He sent me this link which i couldn't read asking if this was a good simulation of KC.

http://www.viralbank.com/image/image_di ... in_id=1760

My mother read it too me. I feel a little numb now.

Drew

Hi BL

Not my area of expertese wondered if the RNIB or

http://www.rncb.ac.uk/

http://www.rlsb.org.uk/school/index.htm

Would be able to guide you?

Drew

Hi Tim

I can't report on Cheltenham myself, I'd love to hear how you get on as I am considering grafting at the mo and guess being a gloster lad that would be where it would be done.

Good luck

Drew