UK Keratoconus Self-Help and Support Association

Hi All, So we're in full consultation swing and NICE have published reviewed guidelines on Crosslinking. There is a heap of information to wade through on the nice website the main page being here: http://www.nice.org.uk/IPG320 The main documents that you will find interesting reading are: 1. The ma...

Hi Everyone, The dates for the NICE public consultation on CXLwill be May 24th to June 21st 2013. As previously mentioned - if you wish to be part of the consultation you will need to register interest here: http://www.nice.org.uk/registration/index.jsp?action=settings_ipalerts&ipId=11996 If you...

Hi Jo
That's great new, so good to hear such positive results and it sounds like she's not letting her KC get in the way which is absolutely the right attitude.
I wish her all the luck for her studies.
Claire

Hi Everyone, Calling all owners of corneas that have been cross-linked! NICE are about to announce a four week public consultation period on the draft revised guidelines for cxl. It's a positive sign that they're prepared to review the guidelines, for many PCT's it's a reason not to provide the proc...

Hi Jo Thanks for the post and great to hear some positivity coming from cxl. I don't hold a medical background so not sure on your question on hydrops - but hopefully someone on here will pick this bit up. In terms of your doughter travelling abroad, unless the KC is something that effects her every...

Peter, Hello, welcome. I echo the words of Ian, don't panic! First things first, this is all new information, what I would suggest is you take the info in and do some research yourself on both Keratoconus and Cross Linking to get started. Diagnosis of KC can take some time, it can be distressing for...

Morning! It is amazing the difference between countries. I'm being interviewed about my cxl experience online in the next couple of weeks by an American Optomotrist who wants to show case crosslinking. I'll pop the link up when it's polished and complete. :-) We are lucky in the UK to have some of t...

Hey there, I had cxl back in September and think i can relate to the fears around eye sight issues. From the research that I have read I understand that the improvement in vision isn't a guarantee with everyone, it effects a high number which is positive but its the topography improvement that's imp...

To all members, We've joined Twitter! If you're online and tweeting yourself please find us and join the online community! I am working on creating awareness of our group and directing people back to our website. If you have any ideas or suggestions - they'd be gratefully received. We've been Tweeti...

Hi Everyone, Lovely to see the responses and hope those that have had the treatment too are experiencing limited blurring and fingers crossed for positive results! I don't see my consultant in Bristol until Jan, so at the moment feel like I have no idea how it's gone, my vision is back to normal, so...