UK Keratoconus Self-Help and Support Association

:D Thank goodness we got a second opinion My son Ben was diagnosed as having KC in April. He was told the only treatment suitable was a corneal transplant. We were encouraged to get a second opinion (in fact we got three). Last week Ben was tried with a sclerel lens and will have his fitted in Augus...

:D RESEARCH INTO ALTERNATIVE TO CORNEAL TRANSPLANT HAS PAID OFF First of all I would like to thank everyone who encouraged me to get a second opinion with regard to Ben having a corneal transplant. In fact we got three. First Ben was told a corneal transplant was the only option as his KC was so adv...

No he has never had treatment to his eyes.

My son Ben was diagnosed as having KTC and was told he needed a transplant. I have had a letter back from his consultant saying that he diagnosed Ben as having 'corneal ectasia', no mention of KTC. Is this the same as KTC?

I was wondering how soon after crosslinking my son will be able to carry on with his normal activities.What can he expect in the following week with regard to how often he will need to take drops and pain killers.

Just thought I'd update you. On Tuesday Ben has got an appointment with a surgeon and opthalmologist at Optegra Eyecare in Guilford and on Tuesday 14th May we are seeing David Jory in Harley Street. Fingers crossed Ben will be offered an alternative to a corneal transplant.

Scleral lenses have been mentioned to me on my other post and they certainly seem a possibilty worth looking into.

There was no mention of hydrops. Ben doesn't have pain in his eye, it feels like it has something in it.

I will find out more about it though as it is a possilbility.

First of all can I just say just how impressed I am with the forums. I’m amazed at how much advice and support is given and so quickly. Only about 6 months ago Ben was being shown how to hold and use a gun, as he is in the process of joining the army. He was using his right eye and had no problems a...

We were told that lenses are not an option because of the extent of distortion to the cornea. I have not stopped researching possibilities. I am looking into crosslinking and intacs as apparently this can reduce the dome of the cornea and restore vision. Has anyone had this treatment when in advance...