UK Keratoconus Self-Help and Support Association

Hello Marcin,

I ´m glad to see you here and as I see you are from Poland. I live in Slovakia and that means we are neighbuors. I hope you will find this forum informative and helpful.

Sophie: I was at the similar situation in some aspects like you are. I was also adviced to go for graft 3 years ago with my right eye. My UCVA was about fingercount at 2m. Well take my post as my view only becasue it is really hard to give precise answer what must be done : 1. Please definitely cons...

Phil: You shaould find some experienced doctor familiar with KC patients as soon as possible so that he/she can review and watch your case closely and advice you on your treatment. Unfortunately there is no cure presently available for our disease but the correction methods and means are much more s...

Peter : The problem with TV is probably caused by astigmatism (irregularities) of keratoconic cornea. Every KCer sufer from this glare and sometiems halo effect at night (or starburts when driving at night) I don´t want to scare you but believe me the career of pilot is not very suitable for someon...

Well unfortunately I heard that nowadays the age when people get diagnosed with KC is lowering. I would watch my child very closely but believe me the chance that he/she will never have KC is much higher than the opposite. That mean don´t panic but stay watchful. I heard about 5 year old child with...

BTW I just want to add that he claims that he also know how to cure it but that there is a possibility of re-infection from patient enviroment. I hope the official study will be up soon and we can discuss it in more details

Hi Alex, I´m not an OD but I think you have much more options nowadays than graft. You shall consider graft as the last option believe me. New procedures and techniques enable surgeons to deal with KC much more effective with less risk (of course you have to meet certain requirements). There are in...

Well guys this is very interesting topic. First of all I want to make clear that I didn´t have any graft and I hope I will never have one. Don´t get me wrong I know that in some cases (some statistics claim 10% of all KC cases, the other states 20%) is graft the only option to be able to see norma...

Hi Salynic, I can comfirm that SoftPerms are definitely much more comfortable than most of RGPs and still can offer good vision acuity. As the downside I´d say long delivery period from most manufacturers and less gas permeability. You shall also definitely take a look at Rose K lenses (custom made...

Hi Dave, I can tell you that light sensitivity or "photophobia" is quite common "gift" for all us with KC. It is also quite common after any eye surgery when your eye heals. Patients usually describe it after graft or rings surgery. It improves with time (I mean after surgery photophobia). It is def...