UK Keratoconus Self-Help and Support Association

Yes they said I couldn't get it cross linked as my cornea was too thin. He said there was lots of scarring on my cornea. I had CXL done privately and amazingly my company paid. When I said to my Doc I would like to get the graft done but I can't afford it for now he said he would give me a letter to...

I have KC in both eyes. My left was diagnosed 8 years ago, had a lens fitted, Doc said at the time it's rare to get this at your age it won't get much worse so if you don't get on with it don't worry. I didn't get on with it so I didn't. It got much worse and 2 docs I've seen very quickly say that n...

Thanks for the advise. I went for a consultation on friday at Frimley Hospital. He said my left was about as bad as it can get. He said my right eye does have the condition too and took a topography. He said to get me referred for cross linking he would need to show my right eye is deteriating and w...

Sorry the link to the treatments is here: http://www.accuvision.co.uk/keratoconus-treatments.html Corneal Collagen Cross-Linking (C3R®) And Accuwave™ Topography Guided Custom Ablation Treatment for Keratoconus (T-CAT) I wasn't sure whether a private clinic offering the above KC specific treatments o...

I found my post from 6 years ago. Here is an update: I got a lens fitted the doc says, your right eye is fine so if you don't get on with the lens after 2 weeks then leave it your eyes won't get any worse. This is what happened, after spending hours just trying to get it in then in pain once it was ...

Well a stage further. I had to see my doctor for no particular reason they didn't examine me but anyway I got referred to the hospital where I had an eye drop and looked at through some machine, he didn't really say what he was doing. He said that at my age if it is KC then its going to be a very mi...

Thanks for everyones replys and words of advise. Im 29 years old not sure if thats strange for it to start at my age or not? The picture on the KC description page looks very scary, I take it that's an extreme case? Or are people here looking like that? I guess there are many different levels of sev...

Wow! Just been reading through this forum! For KC to have its own self help group makes me think this condition I have is more serious than I thought! I know my eyes haven't been right for a long time, then eventually I closed my good eye and couldn't see a whole lot in the other. I just got back fr...