UK Keratoconus Self-Help and Support Association

Hi our Facebook page and twitter profile KeratoconusGB is 2 years old this week. Feel free to join in to share experiences and for up to date news and so on
cheers
www.facebook.com/keratoconusGB

@keratoconusGB on Twitter

Hi I am 43, I was diagnosed in my early 30's and had a graft in 2007 on left eye. How long I had had KC before the diagnosis is unknown. I now can wear a hybrid lens in greafted eye and still wear rgp in ungrafted eye. Vision and comfort is great with both Surgeon may not bother with CXL for ungraft...

Hi
there is a lively group on Facebook if you are interested for support and advice, with KC folk from all over the world
http://www.facebook.com/KeratoconusGB

plus we are on Twitter too follow us @keratoconusGB

many of us have had grafts, CXL, all types of lens

cheers

Hi
there is a lively group on Facebook if you are interested for support and advice, with KC folk from all over the world
http://www.facebook.com/KeratoconusGB

plus we are on Twitter too follow us @keratoconusGB

cheers

i am in Sussex- you have a lot of choice Centre for Sight in East Grinstead, and Mr Daya, nhs and private Mr teimory at Worthing Hospital (KC specialist, surgeon) nhs and private- he did my corneal graft sussex eye hospital in brighton- nhs I saw simon Levy in London to get a letter for my GP £150) ...

me too, i had got fed up with the whole thing as only one person seemed to post endless stuff, and there wasnt much else going on then I get the PM Sent: Fri 08 May, 2009 15:42 From: profilicus To: dweezil1968 Important to read! profilicus Joined: Wed 29 Apr, 2009 19:22 * Private message oh well i h...

CAUTION I don't think that a line has been crossed here, but there is a problem if people post complaints about the service they receive from particular clinics, surgeons or opticians while identifying the place or people concerned. There are ways in both the NHS and the private sector that complai...

red-eye wrote:Hi, I noticed your location is Brighton. Out of curiosity, are you attending Sussex Eye Hospital?

no,
I am at Worthing Hospital with MR Teimory- very good

they told me last Novemeber that the stitches 'needed to come out' as they were ' disintegrating' but then- no word
I have 16 stitches, no idea what type
guess i have to keep trying the hospital appts line and the secretary of the surgeon. I want to start trying lens etc obviously.
thanks

hello I had my graft in November 2007 and all went well, I have noticed the vision getting better. Had an issue with a too tight stitch but no real drama So last November 2008 I had another check up and they said the stitches really needed to come out as they were deteriorating and i was getting sor...