UK Keratoconus Self-Help and Support Association

Hi Lynn My intention was not to directly aim anything at you. All I can say is I was caught on a bad day. I have to listen to individual constantly critisise the NHS on a daily basis and get abused by relatives who blame the front line staff for all the things that go wrong. If I offended you I sinc...

Hi all I am very sorry but I feel the need for a little rant. Having had KC for many years, I have had good and bad experiences within the NHS. However, I have to say that I am extremely grateful for the care that I have received over the years. The thing is, we tend to forget that the NHS is a non-...

Hi I know this may seem a funny question but does anyone know if it is safe to wear sclerals when you are flying as I have this really weird fear that my eyes are going to pop out of my sockets because of the pressure change? :lol: . I am also wondering if it is safe to wear them on really big and f...

Hi I've been wearing sclerals now for about 8 years and for most part they have been brill. When I first got them my eyes would go red when removing them, which was caused by lack of oxygen getting to the eyes and the suction effect when taking them out. This did resolve after a few months, it was w...

Thanks for all the advice Rosemary, you are right my lens fitter is more sympathetic and is the best consultant that i have seen. However, it is the specialist that has told me that there are no new lenses for me to try. I think this could possibly have something to do with the distance i have to tr...

Hi all, As you may be aware I have been having problems with my eyes and scleral lenses. After having two weeks of problems I was finaly able to start wearing my lenses again. I have ben wearing them for about 10 days now and blow me down one of my eyes has become very sore again. I am not sure why ...

Hi all, As some of you may know , 7 days ago tomorrow i went to the eye hospital and was told i had cornial scratches and an eye infection. I am a bit concerned as my eyes do not feel any better. This is really getting me down now because i thought they would be better by now. Does anyone think it i...

Thanks for your advice Gareth, I did bite the bullet and went upto the eye hospital yesterday afternoon and as thought was made to feel like i was waisting their time by the nurse. The nurse had a look in both my eyes and said that he could not see anything wrong but i had better see the doctor anyw...

Thanks all for your great advice, I have not worn my lenses now for a week and have finished my course of antibiotic eye drops as advised by my GP. They are no longer sticky but are still very dry, and sting all the time. I went back to my GP yesterday and was told I have a severe cas of dry eye. I ...

Thanks for the advice I have spoken to my specialist about it before and not much is said about it. I will try again next time I go for my appointment. Gareth, can I ask how you would soak and disinfect scleral lenses as I have always been told that you clean them an store them dry (I use MiraFlow f...