UK Keratoconus Self-Help and Support Association

Sorry Rosemary and Clare, I missed your posts first time round. As you'll see from my reply to Andrew I am awaiting a call-back from the hospital and will see what they say. I'm also going to have my friend speak to the consultant in Bath (she's an eye nurse on his ward) and ask about other options....

Hi Andrew, Yes this was a hospital optometrist. I don't think she intended any harm but just lacks the patience needed for Zach. I have called the hospital today and am expecting a call-back early next week. I've told them I want to speak to someone who can give us ALL the options and not just those...

Hi Andrew, Yes it was the hospital's optometrist. It was funny in that she must of called me the instant my husband and son left her office. She said that they hadn't succeeded in getting the lens in and that my husband had decided to leave it for 6 months... not quite the whole truth. I'm going to ...

Sorry for the delayed post but I am so upset with all this at the moment. I have posted this to the other post as well. Thanks have gone a bit downhill since my post advice We've been back for a review appointment which hasn't gone well. We made an emergency appointment which she was cross about as ...

Thanks for the advice Claire, Thanks have gone a bit downhill since my post. We've been back for a review appointment which hasn't gone well. We made an emergency appointment which she was cross about as she felt it was not an emergency. To be fair I would of been happy to have spoken to her on the ...

Thanks for the extra suggestions - we have a huge make up mirror and tiny torches so he can check the lens his self etc. Although after the "stinging" and tears of this weekend I doubt I'm going to get it in again for a while! I have kicked up a bit of a stink with the hospital today and m...

Morning Andrew and Rosemary, Zach does have an RGP lens - when we got the first one he put it in himself 3 times no problem. But on getting home tried and couldn't do it and hasn't managed it since although he does have a go most days. I think Rosemary is right when she says the "EKK" fact...

Hi All, I'm a bit confused - I posted an update earlier and it's now disappeared... Zach has his new lens, but we are still no further forward... in fact I feel as if we have taken a step back as the conditioning solution now stings his eye!! In fact he was crying today until the tears cleared it. T...

Hi All, Am I glad I found this site. I'm almost at the end of my tether. I have a 12 year old who has been diagonised with KC. Currently it's severe in his left eye and we have been prescribed contacts, left is a must but have been advise to have one for the right eye as well althought we've not yet...

Thanks for the replies Ladies - I can't believe that Zach is now counting down the days until he gets the new lens - just keeping everything crossed that it works out. He's even asked how long before he get's the one for his right eye!! As for our clinic - the worst thing is that the "lens lady...