UK Keratoconus Self-Help and Support Association

I may be late to the party here as you are perhaps already "in progress". I was scheduled to have the two done together until the day of the operation. Part of the logic for me was just one recovery to go through. However, after a review wih my consultant and discussion, it was decided it ...

I cannot comment on the specific hospitals as they are outside my area. Many who move choose to stay at their old hospital anyway, but if you do want to change, there is an established NHS procedure for making it happen. BMEC should be aware of it and are probably taking on incoming patients at the ...

There has long been a disparity in treatment options available to patients with Keratoconus in Wales. That is about to change. https://www.theguardian.com/society/2024/sep/22/labour-plans-to-allow-travel-between-england-and-wales-for-nhs-treatment Hopefully updates will be posted as the details beco...

Two points. Do you go to a high street optician with your lenses in and have the eye test 'over the top'? If it's possible to leave your lenses out for the requisite number of days the eye test result may not be of much practical use, as a useable prescription is unlikely if you have significant KC....

I have worn sclerals for many years very successfully. However, from time to time I would be troubled by the air bubble problem in regular sclerals. I did try mini sclerals once but the Optom could not anything like a reasonable fit. Maybe the minis you have tried are like RGPs where you don't fill ...

If you can manage don't wear sclerals for swimming especially if you are likely to get your face wet! There is a risk of infection under your scleral even in chlorinated swimming pools. Equally you don't want any chlorinated water trapped under your scleral. So if you must, make sure you take them o...

That's good to hear. One way to follow things up is to contact PALS at the relevant hospital and ask them to follow it up for you. It can be useful to engage this way when often specific departments and clinics are 'hidden' behind a switchboard and you have had no email response or even have an emai...

Two things. You don't mention Hylo Night which is available over the counter but can also be prescribed. You use it literally at night, not when you are wearing lenses as it is greasy. The problem with other drops is that they can sometimes actually make things worse if they 'wash' away what tear fi...

A lot of consultants and optoms take the view that to put the graft off as long as possible is a sensible approach. You still have it as an option if the other approaches are not successful. Not directly related to your situation but you will find his article on our website interesting reading https...

Dry eye is common alongside Keratoconus. Sclerals are often a good way of managing it. However getting to the bottom of the problem is important in the longterm. You might want to see a corneal consultant in addition to your contact lens fitter. It can be a symptom of an underlying medical issue. A ...