UK Keratoconus Self-Help and Support Association

Hi Everyone! Thought I would post on here, as you all understand. I am at a crossroads in my life. I was diagnosed with KC when I was fourteen, I struggled at school but managed to pass my exams to get into university to study Primary Education but I had to give it up due to my failing eyesight. I h...

Good news for KC'ers in Beds/Bucks/Herts & London- Mr Allon Barsam is a Keratoconus expert working both with NHS & private patients via GP- referral letter needs to go to sally.bargery@ldh.nhs.uk for NHS or joanne@allonbarsam.com for private appts

Hi Everyone Just to let you know, that I will be going up to London on 23rd November to see Dr Sheraz Daya! I have got to have a 3 hour assessment (really not looking forward to that one) He is going to see what he can do for me now that contact lenses have become really intolerable! :( Anyone else ...

Just wondering, after having a transplant, what drugs are you expected to take? I am not willing to take oral immune suppresants! A little worried, as I think a graft is my only hope now

Jennie x

Hi Everyone,

I was just wondering what the average time was between having one corneal transplant in one eye, and then the other in the other eye? Hope someone can help, as I am looking to have mine done next spring!

Best wishes

Jennie x

I was just wondering whether anyone has had a corneal graft under Dr. Sheraz Daya @ Centre for Sight, East Grinsted. If you have, please could you tell me about your experience.

Many thanks

Jennie x

Thank you for all your kind replies. It is good to know other people out there suffer from this horrible condition! Think I might go back to my optometrist and really press apon him, how much it hurts only wearing one contact lens!

Take Care,

Jennie

Hello Everyone! I was just wondering whether I was the only one who wore one contact lens? The KC in my left eye is so bad that my optometrist cannot get a good enough fit! I wear just one contact lens at the moment in my right eye, but the thing is my left eye gets really sore and bloodshot when I ...

Wishing you all the best for Friday!

Which hospital are you having the op?

Jennie x

Hi Gary Good to know someone else is in my boat! - I was diagnosed with KC when I was 14. I tried RGP's but they were terrible, had all the usual probs KC'ers get! I then got a place at uni to study primary education but I had to give it up because I could only wear my new SO2 Clear lenses for a max...