UK Keratoconus Self-Help and Support Association

Thanks Anne and Lynn for the info - I used to receive the newsletter, but it may still be going to my old address, as we moved early last year. I've already got Intacs in my left eye and it's worked reasonably well in terms of making my cornea more regular and reducing the level of astigmatism, but ...

Hi all Did a search on the forum for this, but didn't turn up anything. I was wondering if anyone had come across these phakic lens implants? Basically a contact lens inserted into the eye to correct myopia and astigmatism. They leave your own lens in and can be 'reversible' a la intacs, but you nee...

Thought I'd give a quick update on my progress with SHG lenses. I eventually went to a high street optician (who had a good knowledge of SHGs) as the hospital didn't really want to know (fair enough - would've required several visits, much more expensive, etc). Am now fitted with SHGs in both eyes a...

I would echo the general advice to tell your manager - my employers have been absolutely top class in working with me to find a solution that we both find acceptable as my condition has progressed.


Pat - hope you get the right result. Good luck.

Andrew - I totally agree about the fit issue. It's why I can't wear RPGs, as they 'balance' on the cone and either dig into my cornea or get flicked out by my eyelid. This was a major issue for my left eye particularly, as the lens had to be tiny to stay in place for any length of time. This may hav...

Thanks for the replies guys. I used to use wetting drops (Refresh) and was thinking about buying shares in the company, given the amount I used to spend on their products, before I had all my tear ducts plugged a couple of years ago. I also bought some Systane in the last couple of days, after readi...

Hi Seems like a long 18 months since I last (and first!) posted, what with having had Intacs surgery and all, but I was hoping I could get some advice on something (relatively) unrelated. I've been having real problems with blepharitis this year (and getting very sore, red eyes most of the time), an...

Thanks for the reply Paula - think I'm just getting frustrated having this 'double' vision, but having read around these boards and the K Center ones, there's clearly some more options to discuss with my current optician. If that doesn't get me anywhere, then I'll be heading over to Manchester doubl...

Hi I’m a 32-year-old man, living in Liverpool, who was diagnosed with pellucid marginal dystrophy at the age of 17. Since then, I’ve been very lucky, as I have been able to get by quite happily with ‘normal’ soft contact lenses, albeit they have to correct around –11 diopters and a significant ...