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by Anne Klepacz
Tue 12 Mar 2024 9:32 am
Forum: General Discussion Forum
Topic: Will i pass KC to my kids?
Replies: 1
Views: 78

Re: Will i pass KC to my kids?

Hi Amrinder and welcome! You're in the same position as most of us with KC in not having anyone else in the family with it. Genetic studies are showing that there isn't one gene responsible for KC but that it takes several different ones all coming together. And that only around 1 in 10 of people wi...
by Anne Klepacz
Sat 02 Mar 2024 5:14 pm
Forum: General Discussion Forum
Topic: Next London meeting
Replies: 1
Views: 97

Next London meeting

A reminder that the next London meeting is on Saturday 23rd March. This is our AGM and our talk this year is by Noorfields Principal Optometrist Aneel Suri 'What's new in medical contact lenses'. We hope to see lots of you there (but please let us know if you're coming so we have some idea of number...
by Anne Klepacz
Sun 14 Jan 2024 12:04 pm
Forum: General Discussion Forum
Topic: CXL one eye or both?
Replies: 9
Views: 2099

Re: CXL one eye or both?

Hello Taffer, I was hoping you'd get a reply from one or two people who had had CXL and used to post on this forum. CXL came too late for me, so I can only speak from talking to lots of KC people and reading lots of people's experiences on this forum in the past. My personal view of one eye or both ...
by Anne Klepacz
Thu 21 Dec 2023 5:43 pm
Forum: General Discussion Forum
Topic: New eye hospital for Edinburgh
Replies: 2
Views: 1792

New eye hospital for Edinburgh

One of our Scottish members has asked us to publicise the petition that Sight Scotland has organised for a new eye hospital in Edinburgh to replace the existing one, which is crumbling away. https://sightscotland.org.uk/new-eye-hospital
Do sign, particularly if you're in the Edinburgh area.
by Anne Klepacz
Thu 07 Dec 2023 12:19 pm
Forum: General Discussion Forum
Topic: Saline or gel for sclerals?
Replies: 3
Views: 20429

Re: Saline or gel for sclerals?

Just to wish you good healing with the regraft. I've never used sclerals, so can't help with your question but I hope someone here will be able to.
by Anne Klepacz
Tue 07 Nov 2023 4:15 pm
Forum: General Discussion Forum
Topic: East grinsted contact lens appointment
Replies: 3
Views: 15139

Re: East grinsted contact lens appointment

That's good news about your referral to Brighton. I'll e-mail you the address for getting a copy of your lens prescription. And I've removed your e-mail address from your post in case you suddenly get loads of e-mails from spammers.
by Anne Klepacz
Mon 06 Nov 2023 12:42 pm
Forum: General Discussion Forum
Topic: Sad news
Replies: 2
Views: 7806

Sad news

Our regular members will share my sorrow at the passing of Mike Oliver, co-founder of the KC Group. Many of you will remember Mike from meetings and conferences and know what a crucial role he played in the charity. You'll find a tribute to Mike on our homepage https://www.keratoconus-group.org.uk/i...
by Anne Klepacz
Thu 26 Oct 2023 3:54 pm
Forum: General Discussion Forum
Topic: Scleral Lenses: Flying + Swimming
Replies: 8
Views: 17910

Re: Scleral Lenses: Flying + Swimming

Except the issue isn't losing a lens but, as the link from the Association of Optometrists Lia posted explains, the danger of eye infections if bacteria get trapped behind the lens. Those waterborne infections can be blinding, which is why we're also told never to use tap water to rinse a contact le...
by Anne Klepacz
Wed 25 Oct 2023 3:09 pm
Forum: General Discussion Forum
Topic: Scleral Lenses: Flying + Swimming
Replies: 8
Views: 17910

Re: Scleral Lenses: Flying + Swimming

Many thanks to all who have put me right. Please ignore my original response!
by Anne Klepacz
Tue 24 Oct 2023 3:12 pm
Forum: General Discussion Forum
Topic: KC people living in Scotland
Replies: 2
Views: 6278

KC people living in Scotland

I suspect waiting times vary between hospitals, especially after Covid and the backlogs that built up then. In theory, it should be no more than 3 months for someone newly diagnosed. Gartnavel sees a lot of people with KC and has a good contact lens department so if you're managing OK with glasses f...

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