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by Anne Klepacz
Wed 22 Jun 2022 7:55 am
Forum: General Discussion Forum
Topic: cxl epi on next month
Replies: 1
Views: 29

Re: cxl epi on next month

Hello Sean and welcome, I think so far everyone who has posted here about their CXL experience has had epi off (which is what the majority of hospitals offer) rather than epi on so it would be very interesting to hear how things go for you - I hope you'll share that with us next month. With epi off,...
by Anne Klepacz
Sun 19 Jun 2022 10:45 am
Forum: General Discussion Forum
Topic: Bit anxious
Replies: 2
Views: 83

Re: Bit anxious

That was a horrible experience. But like you say (and know from your previous grafts) pain isn't usually associated with transplant surgery and the level of pain you had is highly unusual. I wonder if having a DMEK, which involves replacing just the back of the cornea, means the chances of it happen...
by Anne Klepacz
Thu 16 Jun 2022 4:55 pm
Forum: General Discussion Forum
Topic: Exercise suggestions after cross-link
Replies: 3
Views: 82

Re: Exercise suggestions after cross-link

Hi Elan and welcome,
No personal experience (CXL came too late for me) but these are the aftercare instructions produced by Moorfields https://www.moorfields.nhs.uk/sites/def ... ctions.pdf
which suggest that non-contact sports are OK.
by Anne Klepacz
Tue 14 Jun 2022 10:33 am
Forum: General Discussion Forum
Topic: Mask mandate
Replies: 2
Views: 74

Re: Mask mandate

I was at Moorfields yesterday and although social distancing in the waiting areas has gone, everyone is still wearing masks.
by Anne Klepacz
Wed 01 Jun 2022 9:42 am
Forum: General Discussion Forum
Topic: Cross-linking aftermath
Replies: 1
Views: 117

Re: Cross-linking aftermath

Hi Dimis and welcome, Crosslinking stops KC progressing so stops any further deterioration in vision, but it doesn't actually improve the vision (though a minority of people who have it done do get the bonus of a line or two more on the eye chart). Have you been referred for contact lenses to improv...
by Anne Klepacz
Mon 23 May 2022 11:28 am
Forum: General Discussion Forum
Topic: Intacs/Xenia yes or no ?
Replies: 2
Views: 159

Re: Intacs/Xenia yes or no ?

Someone else was asking about Xenia on this forum last year. https://www.keratoconus-group.org.uk/forum/viewtopic.php?f=1&t=16866&p=77022&hilit=xenia#p77022 It seems to be a very new procedure so as Graham says, I'd be cautious about it. Intacs work for some people, but also have their d...
by Anne Klepacz
Mon 23 May 2022 9:46 am
Forum: General Discussion Forum
Topic: Restarsis / Xiidra in the UK
Replies: 1
Views: 95

Re: Restarsis / Xiidra in the UK

I'm afraid a quick Google suggests that this isn't licensed in the UK. Can you talk to an optometrist about possible alternatives? Or ask your GP to refer you to a hospital eye clinic for advice?
by Anne Klepacz
Sun 15 May 2022 2:48 pm
Forum: General Discussion Forum
Topic: Nervous!!
Replies: 1
Views: 107

Re: Nervous!!

Hello Elle and welcome, Crosslinking was invented too late for me but I've spoken to lots of people who have had this done and it's very successful at stopping KC getting any worse. Hopefully some of the people with personal experience will see your post and reassure you. Meantime, have you seen thi...
by Anne Klepacz
Tue 10 May 2022 7:19 pm
Forum: General Discussion Forum
Topic: How to change hospitals/ Consultants
Replies: 1
Views: 161

Re: How to change hospitals/ Consultants

Your GP should be able to refer you to Gartnavel. and if that's actually nearer where you live, there shouldn't be a problem about switching. Let us know how you get on.
by Anne Klepacz
Mon 09 May 2022 1:53 pm
Forum: General Discussion Forum
Topic: Sacleral lens have made my glasses prescription worse
Replies: 2
Views: 175

Re: Sacleral lens have made my glasses prescription worse

Everybody's circumstances are different so this may not work for you. But when I was working full time and wearing corneal rgp lenses (not scleral) with glasses to wear as a backup when my eyes were tired at the end of the day and I took my lenses out, I would ask for a late afternoon appointment fo...

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