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by Anne Klepacz
Wed 14 Apr 2021 9:40 am
Forum: General Discussion Forum
Topic: Eye Drops during Ramadan
Replies: 0
Views: 18

Eye Drops during Ramadan

The following document has been produced by BAME Vision. Although it mainly talks about glaucoma, it is equally important for anyone who is using regular drops for KC, such as steroid drops post graft or eye drops used after CXL. Eye Drops & Medication During Ramadan During the Holy month of Ram...
by Anne Klepacz
Tue 06 Apr 2021 11:49 am
Forum: General Discussion Forum
Topic: NHS & It’s avoidance of intact
Replies: 1
Views: 392

Re: NHS & It’s avoidance of intact

Hello and welcome to the forum. Corneal ring implants (Intacs or Ferrara Rings) have been around for quite a few years now, though how much they are used in the NHS seems to vary a lot from one hospital to another and between specialists. Intacs don't stop KC progressing so since corneal crosslinkin...
by Anne Klepacz
Fri 02 Apr 2021 4:01 pm
Forum: General Discussion Forum
Topic: Advice needed
Replies: 1
Views: 608

Re: Advice needed

Hello Chezza and welcome. I've moved your post to the general discussion where more people will see it. If your KC isn't affecting your vision and you're within the legal requirements for driving, then declaring to DVLA isn't essential, though would do no harm (the most they'd do is ask you to read ...
by Anne Klepacz
Wed 31 Mar 2021 4:18 pm
Forum: General Discussion Forum
Topic: Optician doesnt seem interested in fitting me properly. How do i switch ?
Replies: 3
Views: 189

Re: Optician doesnt seem interested in fitting me properly. How do i switch ?

Hi, I've copied your post to this forum, where more people are likely to see it. It's a difficult time, with so many 'routine' appointments having been cancelled and I guess hospitals vary a lot in how quickly they're able to catch up on the backlog when new referrals are also coming in all the time...
by Anne Klepacz
Sat 13 Mar 2021 10:50 am
Forum: General Discussion Forum
Topic: Condition worsening
Replies: 3
Views: 353

Re: Condition worsening

Just to add that if you can't get an early appt at QMC, there's an excellent optometrist in Nottingham who specialises in KC and is the principal optometrist at this practice https://brooksandwardman.co.uk/ He used to reply to posts on this forum giving us the benefit of his knowledge, and was recen...
by Anne Klepacz
Wed 10 Mar 2021 4:51 pm
Forum: General Discussion Forum
Topic: If only I'd known
Replies: 1
Views: 338

Re: If only I'd known

You can now watch the video of the Sight and Sound presentation here.
https://www.keratoconus-group.org.uk/in ... echnology/
by Anne Klepacz
Sat 06 Mar 2021 5:42 pm
Forum: General Discussion Forum
Topic: Genetic research into KC
Replies: 0
Views: 440

Genetic research into KC

Some of you will have taken part in the genetic study of keratoconus at Moorfields, which began in a small way many years ago and expanded to become an international project. The results have just been published and you can read the press release here. https://www.moorfields.nhs.uk/news/moorfields-l...
by Anne Klepacz
Sun 28 Feb 2021 10:54 am
Forum: General Discussion Forum
Topic: If only I'd known
Replies: 1
Views: 338

If only I'd known

Want to know how new technology can help with all those tasks you struggle with? Sign up for the free webinar by Sight and Sound Technology, designed specifically for people with KC. On Tuesday March 9th at 6.30pm - more details here. https://www.keratoconus-group.org.uk/index.php/2021/02/04/sight-a...
by Anne Klepacz
Fri 26 Feb 2021 4:49 pm
Forum: General Discussion Forum
Topic: Frustrated: Any recommendations for lens fitting?
Replies: 3
Views: 283

Re: Frustrated: Any recommendations for lens fitting?

Hi Sal, We do have a list of optometrists who say they are happy to fit people with KC. https://www.keratoconus-group.org.uk/index.php/registered-optometrists/ The list was compiled some years ago, so some entries may be out of date. But there are two optometrists listed in Oxford that you could try...
by Anne Klepacz
Fri 26 Feb 2021 4:44 pm
Forum: General Discussion Forum
Topic: UK Armed Forces (officer); any hope?
Replies: 15
Views: 6965

Re: UK Armed Forces (officer); any hope?

This was the situation last September as reported by the forces consultant we asked for help. "We did meet and discuss (virtually) and have made recommendations to change the JMES. That will need to be approved by the relevant military occupational health committee but hopefully will be. It is ...

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